My 4 yr old was recently diagnosed with a optic glioma (tumor). She had a slight bulging of her left eye. We have been told that its most likely a symptoms of neuro...
My son has recently been diagnosed with NF1. So far, he only has the cafe au lait spots, but the geneticist wants him to get a head MRI. Since he is only 1, that re...
I was wondering if anyone has a family member with neurofibromatosis. My 10 year old son was recently diagnosed. I've been reading up on it but would appreciate any f...
I am wondering if anyone has had a child or know of someone with a disorder called Neurofibromatosis type 1 and how they are doing (health wise)? I know that having t...
Both of my children have cafe au lait spots on their bodies. My daughter has about 3 or 4 and my son has about 8. I was never concerned about them, as I too, have a...
My 8 yr old went to the genetics clinic because the dermatologist thought he should have genetics testing done. They only sent him for xrays and called today and said...
My 7-year-old has always had a small brown birthmark on his lower back (cafe au lait spot, I believe). Recently we noticed that he has these brown areas on the back o...
Trying to help sis w/child who has few spots. Dr. diagnosed as above name. large spot on face. Anyone have experience with these? Dr. said not to worry but mom still...
My 3 yr old son has had a fever of 104f/40.5c it last four days then goes away. it returns three to four weeks and has a fever for four days and goes away. this has...
