Financial Help for CAPD Equipment and Programs

Who is the one who evaluated him and diagnosed him with this? Go back to them and ask for help. Are there any children's hospitals around you? Start making phone call after phone call to get more information.

My son was recently diagnosed with CAPD, but its very mild. He will get services through a local child therapy center called ChildServe. It will be free because we are on the state insurance. The only thing that the asked me to purchase was a $60 computer game/program called Earrobics....but the home version.

The school district is not really qualified to help you with CAPD anyway....you need to find an outside speech/language therapist that is qualified for this....as not many are.

The Dr who evaluated my son did give recommendations for what his IEP in school should include to make things easier on him. She also gave goals for the therapist.

Do you have the book 'the sound of hope'. It was at my local library and it has a ton of resources in the back of it.

Unless you are setting yourself up to be be a speech/language pathologist for your son, there is no reason to spend that kind of money. There are other books on this, which are a wealth of information on how to teach them so they can learn. The earobics software, HOME versions, are supposed to be amazing and don't cost anywhere near that much.

Keep researching, I am sure you will find a cheaper way to help on your own or find someone to help your child. If you cannot find these books available so you can access the information, let me know and I can possibly go to my library and get the book again and email you all the California information.

My son has CAPD as well. I know the road is hard and we have spent a lot getting him help, but it is worth the effort. He has improved to the point his CAPD is very slight and he started out severe.

What about offering to sell things on eBay for people? You could collect the item, do the listing and ship it off when somebody buys it then take 50% of the sales price. Also, go through your home and see what things you might sell no eBay. I have a couple friends who make several hundred dollars a month doing this. Takes time and effort, but worth a shot.

You could also look into state aide, but knowing what I do about CAPD therapies, it's unlikely they will cover them. Have you asked the therapy providers for hardship grants? Often they will give discounts if you just ask.

We have a very active CAPD community on Facebook: https://www.facebook.com/groups/14521230810/ I bet if you asked there the parents would have a lot of good ideas.

My daughter raised several hundred dollars, with very little effort, doing a Gold Canyon candle fundraiser. I would imagine with a little more effort, you could probably raise closer to a $1000. She didn't bother to sell to anyone at school. I sold to a few people at church. And then I had a candle party, and only maybe 6 people showed up. So, really not much effort at all. Sell to more people. Have a bigger party. Etc. Get more people, family, involved in selling at their places of business, etc.

https://sgarrett.mygc.com/Fundraise

Raising money is really hard... especially if it's for an individual with an ongoing disorder (rather than cancer or something that tugs at the heartstrings). Many people just don't have the money or interest to pay for someone else's child's treatments. What does your health insurance say? Do you have a case worker at your insurance company who can help you navigate the paperwork? If not, ask for one! And if you don't have health insurance for your son, have you looked into whether he qualifies for Medicaid or other subsidized health insurance that might cover some of the treatments?

Either way - as much as you didn't like the public school system, it's probably your best bet. Get your paperwork in order... to show he really has CAPD, and insist that the district pay attention to you. They must legally provide reasonable accommodations to every child. It doesn't mean that your son will receive every treatment out there that you'd like (there are a ton that are somewhat experimental for CAPD), but the district should work with you to design a program where he can grow and learn. You probably hate the thought... but perhaps a second try is worth it?

Is he on Medi-Cal? They should cover a majority of the costs if a doctor prescribes it. If he's not I would look into it as it's there for children from low income families without insurance, as is Healthy Families.
http://www.healthyfamilies.ca.gov/Home/default.aspx

Children's Hospital of Orange County aka CHOC's, contact them and see if they can refer you somehere for assistance.

Facebook. Set up a page specifically to profile your son's situation and to raise money through PayPal donations. But be aware that people will scrutinize and question your request and motives, demanding an accounting of collected funds and how they were used, I've seen them doing this with parents of dying children.

In addition, depending on your source of income, money raised through fundraising or donated to you might have to be reported as income, cutting into what you are eligible to receive.

I know that United Healthcare has a children's foundation that gives out grants to pay for medical things. You can check out their website for further information. http://www.uhccf.org/