J.,
First I want to let you know how sorry I am to hear your child is ill.
Second, I want to tell you my own experience. My brother, 2 years older than I, grew up fighting leukemia. His illness was discovered when I was in my infancy and he was just over 2. My parents were very young, dad 22 and mom 25, with no money what so ever. We lived in a village 2 and a half hours from the nearest hospital and in our village we had only our family doctor, very capable but with a very limited facility. Therefore all my brothers treatments were provided at the hospital in the city with no facilities for families and mom had no access to childcare for me when she was with my brother in his treatments. My dad worked 3 jobs to keep us afloat and that left him little time to care for us and help, he was a sole provider and did fantastic taking care of his family in that respect. I spent much of my early years in the care of uncle, grandparents and friends at the village as my mother had to stay for weeks at a time in the city for sometimes my brother came close to losing his battle.
One of my mothers early responses to his illness was "how to give my daughter a normal life through all this"? The doctors that treated my brother advised her to try and treat both of us as "normal" as possible, meaning not to "dwell" on his illness and discuss it to much and just be frank about things. When he was ill "he just was" and they had to go to the city and I went to someone that could help at the time. The doctors where young with young children them selves and for this was a long time ago everything was experimental, my brothers treatments as well. They gave my parents the best advice they knew at the time. To make a long story short my brother was the first person to be cured of the particular type of leukemia he had and I LOVED my childhood. When ever there was something done for my brother similar things were done for me without much discussing it. My brother still does not talk about his illness for he liked growing up with it not being the focus in our lives. Some may think that being in denial or ignorant for we have all this information available to us. Well, in my experience sometimes less is more.
You know that you will give your older, healthy child, time when you have it and he will feel it when you do. I never felt excluded or less loved and in fact I feel I had the most perfect upbringing anyone could ever have. Of course thats given my brother got healthy and I still have him to look up to.
Acting "matter of factly" , out of necessity, may be the best thing you can give your family. Don't forget that pressure is on for you husband too.
I wish I could transfer to you the success my parents had with our situation and if you want you can contact me. I write this with much respect and hope for all the bestfor your children and all you family. My parents are still together and going strong 40 years later. My brother beat all odds and has family of his own after many times coming close to not making it. His battle lasted him good 12 years. I'm racing my own children now hoping to give them the same good memories I have from my childhood and the love for each other like I love and respect my brother.
Best of luck to you,
H