K.F.
Do you guys receive any sort of assistance? First off I would sign up for the Medicaid Waiver. It's not income based and it can get you some respite care so you can have time to leave the house and be able to leave your daughter in capable hands. I wish I had some wisdom for you as far as leaving your husband. Do you get SSI? I have a son who is in a wheelchair also, he is 8. He is mentally all there but unable to do anything for himself. He also has a g-tube and he also needs to be cathed, fed, bathed....it can be really tiring. I hope you can find help somewhere. I would certainly start looking into programs that can help give you a break!! Email if you want to talk to me more ____@____.com
K.