H.W.
Boy, it sounds like you have a very caring husband. :)
I'd start from that place, really. Sometimes, hearing a caring person's concerns about our behavior is difficult. Add to it, when we are focused on one person's needs in our relationship, the other gets the crumbs or 'what's left'. I think this is one reason the stress of having a child with delay/disabilities or special needs often leads to divorce. People get so pulled into what the child needs that it's easy to let what the whole family needs get out of our grasp.
Having a kid with a few challenges myself, I can understand some of what you say. I've had to be deliberate in figuring out healthy balance for our family. I'm the primary ADHD researcher in the household; when Kiddo was in school, I was the one looking up information and trying to work with the school. Having other things to focus on as well, like gardening, volunteering (and then teaching when we started homeschool, which is a fun blessing as I love learning, research and teaching), seeing friends, taking time to STOP.... it is all important.
One thing I would strongly suggest, as someone who has and does work from home, is having a stopping time each day. I tend to go whole-hog on things; when I had my preschool here, I had a rule of stopping at 8 pm. No cutting out stuff, no record keeping, no lesson plans....NOTHING after 8 pm. It was to be only reading or tv or something fun. I'd say, give yourself a reasonable time boundary.
I also want to say something, and it isn't meant to discourage you, but just to temper your perception of this work: you can make the best, first impact by taking care of yourself and your family. Of course we want to see our children, and the children of others, better served. And yet, even with all of the resources available to us, we often have a limited sphere of influence. Our job is not to make the world pay attention, our job (esp as parents)is to first help our family, our child/ren, and then do what we can to help others.
Consider why you hired experts. Is it to have to keep up with everything they know as well, or is it to provide perspective and guidance? It is to make you work harder, or is it to give you a team to help so you can *enjoy* your family? Because, when it comes right down to it, I know that *this* is what my family needs from me: to feel loved, enjoyed and appreciated just for who they are, to feel that I can give them my time and just relax with them. Sometimes, going out of town and disconnecting from daily life is very helpful. Or planning an afternoon to go out and explore something new, a new place, a new ice cream shop or park or something.... our kids and partners need us to be present in those moments too. I hope this helps a little.... there is nothing noble in getting so fully immersed (and, if we are being honest, a bit stressed ) by advocacy that we push peace away. Sometimes, it's very important for us to Just Be. We are still worthy when we love ourselves and allow ourselves to stop work. The work will still be there, years from now. The time and the moments? Not so much.