Not Happy with Riley's CH: (

I don't know this hospital at all. My children were both in the NICU as newborns but not in the hospital since then. I found talking the the hospital social worker and case manager was helpful and they had more time to answer the background information type questions. The social worker for my son did some research online and gave up a bunch of printed information.

My grandmother has been in the hospital a couple of times in the last few years. Someone really did need to be at the hospital with her most of the time (not 24 hours but at least several hours every day). My mother and her 3 siblings took turns. The nurses made some mistakes with medication and nearly caused a fatal relapse. I know this is not what you want to hear. If you have to go back to work see if there is another relative of friend that can be backup for your wife so she can get a break.

I hope your son continues to improve.

What is his diagnoses???

Can you move him to another hospital ?

First of all, these doctors 'laughing at your questions' should be reported. Secondly, have you discussed any of this with Hoosiers insurance? They can clarify how much insurance is available (but believe me, the hospital also checked that out or they wouldn't be keeping him there). If there is nothing wrong with him why don't you take him out? The unfortunate situation is this time of year there are many respiratory issues. If you are able to be bedside the wholetime and are helping him progress wouldn't you feel better elsewhere or at home with him?

Not sure where you are located but Children's Memorial in Chicago and Children's Memorial in Milwaukee are both excellent hospitals. These hospitals help with the financial end because many people make donations. Keep pushing to get answers for your little one, you are doing the right thing. You can also contact the patient advocate at the hospital if you are having issues with the staff and file a complaint. You and your wife are the best ones to fight for your child. Lots of prayers for you and your family.

You are in a tough spot and my thoughts and prayers are with you and your family. My husband has chronic medical issues....long...long story. In any case we have found that yes...he is a guinea pig...because whatever he has is something new and drs. have to run multiple test to try to figure out why...often times tons of test are run...are inconclusive...and eventually the problem just resovlves it self or we eventually get a solution.

This is the time that you have to bring in all of the support you can get from family, friends, friends of family, church family, neighbors. Let everyone you know what you are going through and what you need. A mass email is a good starting point. I know it is hard to ask for help...but now is the time that you have to put that aside and ask for help.

Yes my view is that you need a patient advocate with the patient all the time. Checking on status, making sure that proper care is given, meds are administered, etc. So ask friends to come in for shifts to help you out. Start a journal for bedside, so that people can put in notes, or answers to questions that you have.

Ignore any negative feedback from drs. or nurses, ask any questions you have be persistent. You are the advocate for your son. So no question that you have is a silly one...don't let any medical person convince you otherwise. You have a vested interest in this...they don't. So keep asking, stand tall. Trust me I have asked plenty of "stupid" questions. Oh well...but you know what, often times my constant questioning has resulted in positive outcomes...maybe because they just want to get rid of me???

Anyway bottom line...get as many people in to help and support you as you can.

you need to ask for a patient advocate. Every hospital has one. They will help you. Best of luck. I hope ur out of there soon.