My 2 1/2 Year Old Was Just Diagnosed with PDD/NOS and Static Encephalopathy

My heart goes out to you and your daughter. My son was diagonised with Static Encephalopathy, like you everyone thought i was just over reacting after all he was my first born. It has been hard for me everytime I go to the dr it's something new. But thank the lord he is better then what they told me he would be. He is delayed in every area of development, we put him in school early to help him catch up. He'll be four in a couple of months and still doesn't fully understand what I'm asking him sometimes. It was hard on our relationship at first he believe it was all in my head, until I made he go with me to an appointment, after that his dad change his attitude. It's the hardest thing I have ever encountered in my life and I'm only 22. But I don't treat him any different from our 2 yr old. When talk to him the same, we treat him no different like you be love our little boy and thank the lord for him everyday. I was told he wouldnt walk, talk, feed himself, and he proved them wrong. Be patient with her and never give up because she'll never give up on you. Just take it day by day and live it to the fullest. I wish you all the best.

I am so sorry to hear about your daughter and your husband. Google "Special Care & Career Services," which is a charitable org set up to help families with special needs; they are really nice people and they can probably put you together with some support groups. SCCS can provide assistance to your child, also. SCCS helps children with special needs before they are old enough to attend public school.

Take care and know that God will never give you more than you can handle. He will give you the strength you need. If your husband could not step up to the plate to help with your daughter in this time of need, then I'm sorry to say you may be better off without him.

I am so sorry for what you are going through with your daughter and husband. I also feel if he is not man enough to step up to the plate to his own daughter and you and your daughter don't need him. I am not sure about Static Encephalopathy but I just read about it on this website and you can also contact Easter Seals as well. I wasnt to tell you I know how challenging it is to have a child w/Autism. My son was diagnosed in Feb 2008 w/Autism Spectrum Disorder and he also has Sensory Issues, Speech delays, motor skills delays, some behavorial issues as well. It is Very hard to deal with it as a Single mother but God doesn't give us anything we can not handle and you must be pretty special to have a child w/special needs. I feel that you were the chosen one to have a child w/special needs because God flet that you were the one that can handle it and you are special.
I try to treat him the same as others but you have to remember that your child is not the same because of his challenges so you have to have A LOT OF PATIENCE AND UNDERSTANDING and don't deny it to anyone that your child has some problems. I hope this helps.
God Bless
M.
http://www.come-over.to/fasstar/static.htm

I don't know about Static Encephalopathy, but I do know about autism because my son has it and autism is very treatable. Early intervention is key to helping your daughter get the most out of life.

Easter Seals has a great program and maybe they know about Static Encephalopathy too. Here's there web address:

http://ntx.easterseals.com/site/PageServer?pagename=TXNW_...

Also, check out ECI in Carrolton... they should have services you can use too... I'm not sure at what age, but I know even pre-schoolers get help from ECI.

It's hard on marriage to have any issues outside the norm, but I'm blessed that my husband and I have a great relationship.

This is the true story of the family of one of my former colleagues. They had a severely disabled child (not the same disorder--their child's disorder was degenerative and more severe) and the mother (an English prof & author) wrote about the challenges of caring for their son and the toll it took on them. Maybe a little depressing at your point, but I really enjoyed the book and got a lot out of it. http://www.amazon.com/Before-After-Zachariah-Different-Co...

I'd sit and talk to my husband were I you. If your marriage is salvageable, I would salvage it. If it's not, get the best attorney you can find - because you're going to need them to go after child support, medical support, and spousal support in order for you to continue staying home with your child.

Sometimes our guys are used to being our kids too, and they screw up when they're not anywhere close to the center of our world - especially if they don't understand why. My youngest son had some of the same problems, and I spent the first two years trying to figure out what was wrong with him - ASD was finally the label put on it, and he grew out of most of the rest. My husband screwed up too, but he is genuinely remorseful and - especially now that he knows what is wrong - is very actively involved with addressing the problems.

*hugs* and many prayers for you and your little family -
S.

Trish, I cannot imagine what you are going through, and I cannot offer you any advise about your daughter. But I can tell you that I will be praying for you and your family and I do know that there IS a reason for everything.
I will say that growing up in a loving home is one of the greatest gifts you can give to any child. I know you and your husband both love her, but you need to love eachother for her to truely feel secure. I don't know how you can come back from an affair, but I know that there are people who do it. Try hard and see where it goes.

Trish, honey, we've got your back. You got a lot of good advice here and I hope it helps. I would suggest you also check out the Autism Support Group in your area. You can meet directly with people going through similar challenges.

My daughter also has a form of autism, while not as pervasive as yours, it was years before we knew what was going on, and her dad thought I was making it all up.

We ended up divorcing, and in retrospect I was not aggressive enough in my demands for the amount of child support and spousal support. I had no idea the amount of time I would need to meet my daughter's needs, and how much it would affect my work and career (I finally ended up quitting). Don't be afraid to ask for what you need, whether in marriage, or divorce so that you can be there for your daughter.

If you need a friend, email me. I'd be glad to listen. My heart goes out to you.

Hugs. B.

an amazing doctor who has been helping thousands of autistic kiddos is dr. amy yasko (http://www.dramyyasko.com). my son has been on her protocol for 3 years and is hugely improved. dr. amy has an online forum that is AMAZING and a huge help for so many on a daily basis (http://www.ch3nutrigenomics.com). two local drs who see autistic kids and who also know dr. amy's protocol are dr. pierre robert in grapevine and dr. charles hamel in arlington.
i have a blog in the process of being built that may have info u could use- http://www.showmetherecovery.wordpress.com. also go to http://www.generationrescue.com. call your school district's office and have your child evaluated for special needs assistance because there's a program in every public schl district for developmentally delayed kids to get them up to speed- and it's your tax dollars at work, so no crazy private therapy expense! :)