B., my daughter is now 10 months and 90% recovered from reflux (G.E.R.). At about 3 weeks of age she started screaming out in pain after meals and had difficulty sleeping. All the doctors said that it was colic, but they were wrong. Severe reflux can sometimes be hard to diagnose and doctors can easily make mistakes. They made several very painful mistakes with my daughter, so be attentive in dealing with this illness.
Anyway, I went to see the pediatrician right away at 3 weeks when my daughter started having problems. I told them it was severe, but they said that the symptoms of reflux are normal and not to worry. Three weeks later my daughter was suffering so badly that none of us could sleep. I was sure that it was not just "gas" or "colic" as the doctor had assumed. She was screaming most often after meals, pulling away from the breast and crying even when hungry, she would cry suddenly and painfully for no apparent reason, she had terrible, rotten smelling breath, wet burbs, gurgling sounds in her throat, and have what looked like sleep apnea (She never did have severe vomiting as most doctors thought she should with reflux. It would come up into her throat and she would swallow it back down...this is common with some infants.) We didn't know what to do, and again the doctor said she was normal! I was furious. The doctor would not take me seriously, so I took her in to E.R. They could not figure out what was wrong, so they put her on an apnea monitor and kept her for observation overnight. Numerous tests were done and nobody knew what was going on! Finally, I took the initiative and searched online for an answer. I discovered Infant G.E.R. and told her pediatrician about it. He hesitantly acknowledge it and started her on treatment. She started out on Zantac, but after a few days she was severely constipated and could not make a bowl movement for several days! This can be very dangerous for a baby. He told me to use laxatives, which seemed crazy for and infant, but I trusted the doctor. They did not help. She was also having these terrible attacks that looked like small seizures...which we now know to be Sandifer's Syndrome. The doctor said that he "didn't know what else to do. She is already on the full dose of medication." This went on for over a month when I finally took her to the E.R. again! She was convulsing in pain and could not sleep! She was so ill and in the hospital for two days with what we thought were seizures. More testing was done. It was so frightening. At the children's hospital in G.R. she was finally diagnosed with Infant G.E.R. and Sandifer's Syndrome. Well, long story short, I found out from the children's hospital's pediatrician that our pediatrician in Grand Haven had over medicated her by about 4 times the amount recommended! He had started her out on the highest dose of this medication first! A dose that would be given to a 250 pound man! We immediately called her pediatrician to complain and told him that we were taking our daughter out of his practice. We immediately found a new pediatrician in Muskegon who switched her to a low-dose of Prevacid.
Long story short, after about two weeks on the low-dose medication her reflux symptoms started to improve, her constipation went away, and her "seizures" were minimal. I know that this is kind of a horror story, but by the time my daughter was 8 months, she no longer needed the medication and she began sleeping almost normally. Now, at 10 months, she rarely has symptoms and we have not seen the Sandifer's since she was about 7 months. She still wakes up during the night sometimes with gas pains from her reflux, but it is minimal.
If you really believe that she has the symptoms of reflux, you should take her in to see a pediatrician ASAP and find out if she needs to be treated with medication. I recommend Dr. Jennifer Hultman at Hackley Community Care Center (2700 Baker St). She is an excellent pediatrician and she is very good about listening to parents' concerns and acknowledging them. You are doing the right thing by putting her more upright when she sleeps. Make sure that you keep her up right in a bouncy seat or something for at least 1 hour after meals. My daughter could did not do well in a back and forth swing, so it is possible that if you put her in a swing, you may want one that swings side to side, as the back and forth motion tends to force the acid up into their esophagus. As for medications, you will have to ask your pediatrician, but I think that there really is only Zantac or Prevacid for infants. Please make sure that your doctor starts with the LOWEST dose and works his/her way up the dosage chart as discomfort persists! This was the biggest mistake with my daughter and caused her extreme pain and discomfort. If you have any more questions, please do not hesitate to ask!
Please check out this website to learn more...
http://www.infantrefluxdisease.com/infant_acid_reflux/ind...
This is the BEST site that I could find and it really explains things well! Hope this helps!
(P.S. - Sometimes switching to a Lactose Free formula can help, as it is easier for most babies to digest. You can also give a small amount of cereal before meals to help prevent additional acid in your baby's stomach. Ask your doctor first though.)