K.O.
Doris Day's answer is right on track. Putting your loved one on hospice is one of the hardest decisions that you'll ever have to make. But once your doctors have recommended it, they are letting you know that your moms condition is terminal. Now you have to make the difficult decisions regarding how you want her final days to be.
Do you want her to be in the hospital being poked and prodded and in care where they can put her on a feeding tube and restart her heart and/or breathing until her body gives out?
Or do you want her to be at home, surrounded by the family and friends that love her... Still receiving nursing care, and home aid care and even Chaplin care?
The worst decision I ever had to make in my life was to choose hospice when they would not insert a feeding tube. When my father stopped eating our automatic response was, "We have to make sure he is getting nutrition!" But we knew that he did not want to be I the hospital and that he wanted to spend his last days at home. So, we listened to the hospice workers when they explained how, at the end of a human life, just as with other living creatures, many people's bodies start shutting down and they just stop eating. Actually having food forced from a tube can increase the pain they are having. This was an even more difficult decision for us, because my father didn't suffer from cancer or heart problems, etc. he had Alzheimers. So when he stopped eating we figured we needed to have a feeding tube started.
However, as the days went by on hospice, we saw how much love and carrying each person who came to our home had for my Dad. How gentle they were with him... And how many good moments we were able to have with him during his final month.
Medications were prescribed for pain, but my Mom got to make the decisions regarding how often to give them. So if he was hurting, we medicated him and if he wasn't, we didn't have to. So he wasn't all drugged out all the time. They also prescribe anti-anxiety medications, if needed. Also, he had moments where he would eat a little soup or something else that he wanted, but mainly we would give him water or sprite when he wanted it.
And they provide all the equipment your mom would possibly need like bedside toilets, Walkers, bedpans or other hospital grade supplies.
My Mom was able to care for him as much as she wanted to (sponge baths and changing his clothes, helping him sit up comfortably) but the home care workers would come and do the harder chores like changing sheets, etc. and our family was able to be close by staying at their house and sitting with him to talk periodically as his strength allowed.
My father lived for five Weeks, surrounded by his loving family, talking about his life. And one day, after all for of his children had been in to see him and say our "I love yous", he went to sleep and passed away. It was a beautiful experience for all of us. Although it was such a hard decision to make to not have a feeding tube, we realized afterwards that the hospice workers knew exactly what the were doing. My father was comfortable and coherent and calm right up to the end. I will never be able to express my thanks enough to the hospice team that cared for my father...
My father lived for five Weeks