we have been through this - twice!! my son was born with tort and plagio - he had 2 helmets and we have been in o/t, p/t, s/t among other things for a while!!!! i HIGHLY recommend cranial tech!! we went when they were in toluca lake - but they are now in pasadena. here's their info...
their website is http://www.cranialtech.com/
Cranial Technologies, Inc.
200 East Del Mar, Suite 104
Pasadena, CA 91105
Phone: ###-###-####
Toll Free: 866-923-1044
Fax: ###-###-####
Clinician: Karin Sung, PT
Consults and Treatment Available:
Monday thru Friday: 9:30 AM - 6:00 PM
please feel free to contact me with any questions you may have. i remember i freaked out about this and had so much to learn (my son had tort too which makes it dif't - does your frined's?) i have been fighting the insurance company every step of the way and at 4 years old we are still in s/t and see an osteopath. no one else would ever know oliver had to deal with this - but i am a big believer in early intervention. is your friend in p/t? regional center is a great resource where they will evaluate and provide treatment for FREE!!
check out these websites - they were a great resource for me and support!!
http://health.groups.yahoo.com/group/Plagiocephaly/?yguid....
http://health.groups.yahoo.com/group/Torticolliskids/?ygu....
again - please don't hesitate to contact me anytime! and i cannot stress enough how much i recommend cranial tech.
good luck!
J.
_______________________
not sure where your friend lives - but i cut and pasted from a letter i wrote to another mom below - includes info about the people/specialists we saw as well as regional center.
hope this helps!
J.
Pediatric Neurologist: J. Gordon McComb, M.D.
University Children's Medical Group
Division of Pediatric Neurosurgery
1300 North Vermont Avenue #1006
Los Angeles, CA 90027
###-###-####
Pediatric Neurologist for 2nd opinion:
Dr. Nancy A Niparko
8733 Beverly Boulevard, Ste 200,
Los Angeles, CA
Osteopath: Dr. Tseyli Mantooth, D.O.
1448 Fifteenth Street, Suite 207
Santa Monica, CA 90404
###-###-####
Physical Therapist: Evelina Ricci, RPT
PT `N PLAY
###-###-####
Occupational Therapist: Kid Skills
Ellen Lenok OTR/L
11110 Ohio Ave # 206
Los Angeles, CA 90025
###-###-####
Cranial Technologies, Inc.
200 East Del Mar, Suite 104
Pasadena, CA 91105
Phone: ###-###-####
Toll Free: 866-923-1044
Fax: ###-###-####
we also go to an amazing speech therapist -
Nicole Archambault Besson
1218 Sixth St. Suite #2
Santa Monica, CA 90401
###-###-####
another thing that was really helpful was to contact the early intervention - regional center for your area. if you are on the westside that would be the westside regional center. when we lived in west hollywood it was the lanterman regional center. they did assessments and provided us with services - all for free as we qualified due to oliver's
condition not financial reasons. they even paid for us to go to fit for kids as the o/t assessment recommended it. we were actually already going and paying for it ourselves. oliver loved it! we also did swimming lessons which helped with balancing his motor skills. i don't have the regional center on hand either - but i will find it. you can also just call information.
my biggest suggestion is to get on it now!!! don't wait and do as much now as possible as it makes a difference. at 2 1/2 we are still dealing with things - although not bad - it is still going on. i have found the osteopathic appts to be really helpful for more than just his head! also - as for insurance - we fought them and they paid for most everything!!! i can send you some letters if you would like - and make sure you keep track of everyone you talk to - including the date and name of the person on the phone. i sometimes have to submit claims 3 times!!!! and it is only b/c i had a 'system' that i could keep track of it all! well worth it though as almost no one was in network and we wanted the best people that had been recommended.
i'm sorry if this email rambles and brings up more questions than answers. please ask me any questions.