Has Anyone Lost a Baby Due to Cystic Hygroma and Turner's Syndrome?

I am so sorry for your lost.

I have no experience with this syndrome. However, last year, my sister lost her daughter to cancer. This was very painful for our whole family. I know that the grief can leave you feeling like there is an ache in the pit of your stomach that may never go away.

I hope that you have people around you that care deeply for you and allow you to grieve. You are in my thoughts.

So sorry for your lost. I know how difficult it can be.
I lost my little girl "Amber" when we were 23 weeks pregnant. She had cystic hygroma. I still have her ultrasound pictures where you can see huge formation on her neck. We wanted to keep her and was looking into surgery after birth. However, my amniotic fluid started leaking and we couldn't save her.
It was really sad but I sometimes think it's better this way so she didn't have to go through the painful surgery.
Good luck. Take good care of yourself and then try again when you are ready. We are so blessed to have 2 little healthy ones now.
Best wishes to you.

I don't know anything about hygroma, however, my niece was born with Turner's syndrome. She is now 13, and perfectly healthy. She is a bit short for her age, but that has been her only effect from Turner's.

I do not have any experience with this, but I wanted to tell you how sorry I am that you lost your little girl. You are in my thoughts and prayers. I wish you the best in your attempt to conceive again.

I am so sorry about the loss of your little girl.

I am sorry to read that you lost your sweet baby. My daughter has Turner Syndrome. What I learned about it is that it is not hereditary and that it effects 1 in 2500 girls. I would have thought with these odds, the condition would be common knowledge, but sadly it isn't. My daughter is 25 years old now, and I found out she had it when she was 12, when I noticed her peers going through puberty and growth spurts and she wasn't. I asked her pediatrian about it and he recommended she see a endocrinologist. It turns out that she has 1 3/4 of her 2 x chromosones, which makes her moasic. She did grown breast and finally got a period when she was 13, however by the time she was 16, her estrogen levels had started to drop. The dr prescribed birth control pills as a means of hormone theraphy and to keep her menus. Otherwise she would have gone through menopause at 16. She will have to take the pills until she is in her 40's or 50's and she can't have any children. She is relatively short, (4'11) because of her condition. But I noticed that their are plenty of woman out there that are just as short as she is. So at least she doesn't stand out.

I also have 2 other daughters (7 and 11) that have both chromosomes.

Sorry that you lost your little girl.I have never lost a child (maybe b/c the lord knows it's not something I could emotionally handle) but none the less I grieve for you.I wish you luck in getting past this and being able to have more children in the future.If it was me personally I would have a problem with wanting another since I would feel guilt about "replacing" the baby I lost with another.So I am happy for you that you can find a way to move on and still funtion.God bless you and your little girl in heaven.

I am so sorry for your loss. My 19 year old daughter just lost her baby to Turner's syndrome at 19 weeks 1 day, Cycstic Hygroma and Fetal Hydrops.
She was told that her chances of ever having this happen again are very very slim. the hygroma and hydrops are very common in fetal dx of Turner's. I spent many hours researching Turner's and there is not a lot out there. I do know that the very few Angels that are able to be born have various different issue. the more common are short stature, they are not able to get pregnant, however there are a few that are able to conceve a child of there own
, and there are the heart problems, my undrestanding is that this also can be fixed with surgery.
Please stay strong and remember that you are not alone in your sorrow.

Grandmother of Angel in Heaven Baby Kiya.

My husband and I decided to try one last time for a little girl because we have 3boys 18,15,10. After 6 months of trying we got pregnant and I went in at 18wks for a ultrasound they told me my baby had a lump on its neck and possibly other problems so they sent me to a specialist. The specialist told me that we were pregnant with a girl but she has some serious problems she was collecting fluid in three different places (back of her neck,heart,kidney) her heart may have a hole and her arms and legs were shorter than normal babies. I didn't know what to do but prey,prey and prey she would make it through this. On my next visit at 22 wks I went in for the ultrasound I knew something was wrong because the tech took about five minutes then went and got the doctor. The doctor told me that my baby girls heart was not beating anymore I felt so sick and angry and sad just a burst of all my feelings and emotions all at once it was a day I would never wish on anyone. It took 4day to finally get a room at the hospital for them to induce me it took a day and a half (2400mg) later before I had her I think it was the saddest thing I had to do in my life because I knew there wouldn't be that little cry coming out. My husband and I held her for 2 hours I didn't want to le her go. She had my chin,cheeks,mouth she wad 2lbs 2oz so tiny. It hurts my heart everytime I look in the mirror because that was her face . It's been 17 days since I had her and I still can't believe she is gone I feel like I'm going to wake up from this nightmare and she be right there and everything will be ok. I'm 32 and am scared to try again I don't even know if I want to because I don't think my heart could go through that again.

My name is S. and my husband Lamar and I lost our 11 month old daughter Fallon to lissencephaly/miller-dieker syndrome in August of '07. We also had a miscarriage in December of '04 @ about 9 weeks and there was no real cause ever found. I can tell you that you should get genetic counseling/testing before you go forward with your next baby just to know the risks that you may or may not have in a repeat of the condition. When exactly did you lose your preganancy? There is a loss/mourning period that varies for all people even within a marriage. There is a great book called Empty Cradle, Broken Heart by Deborah Davis that addresses miscarriage and the loss of an infant due to different illnesses. My husband, Lamar, and I have a great marriage and have been married for 5 years but been together for 11. I can tell you that despite our strong relationship we just went through a week of termoil mostly due to dissagreement over things having to do with the rememberance/mourning of our Fallon. I am also 21 weeks pregant with our second daughter Phoebe. We did go through gentic testing and were told that Fallon's condition wasn't genetic and we had next to no chance of having it repeat. Having said that, I was introduced to a world of parents that I never knew about that have children with all types and ranges of special needs and I know that you can never test for everything and any child that is born "healthy" and "normal" is truly a blessing. My phone number is ###-###-####. Please don't hesitate to give me a call or email me ____@____.com. I have been where you are and it is a scary world. There is a lot of info out there but it can be overwhelming to look into things so shortly after having been given a diagnosis or suffereing a loss.

I am sorry for your loss.
My sister has Turner's Syndrome. She is 36 and has had two open heart surgeries - most recently Dec. 25, 2005 when the 'patch' placed on her aorta at the age of 13 ruptured. I did extensive research on Turner's while she was recovering in the hospital and never read that cystic hygroma was a side effect. It is a chromosomal disorder and is not genetic. It rarely occurs multiple times in one family. Consulting a specialist would give you more information; I pray you have your heart's desire.
K. h

I lost my daughter to Turner's Syndrome on 7-16-97. When she was born, she had a cystic hygroma from the top of her head down to the base of her neck. Another one had formed at the base of the neck and went down 3 inches on her back. Her neck, fingers and toes were webbed. It was gut wrenching. When some people looked at her, they would wince or walk away because they did not know what to say or how to act. After her passing, I was a lost soul for several years. I did not understand why this happened to me. I was tired of listening to people say that all things happen for a reason and that she is better off. I blamed myself and God for Shelby's suffering. A couple years ago, I reconnected with my spiritual roots and found inner peace. I know that Shelby felt my love. I know that Shelby helped me heal. Shelby taught me compassion, tolerance, and patience for all people. She gave me the strength to reach out to other grieving mothers. She helped me find a passion of volunteering with adults and children with disabilities. When I help others with special needs, I feel her presence.
Please know you have my deepest sympathy. Time heals all wounds, but the scar that is left after burying a child often fades but never disappears.