My daughter had a fever of 102,7 so i took her to the hospital and she had all these tests done she is only 4 weeks old she has a cyst blocking the uretha tube and a enlarged right kidney that is not functioning so she had a uti bladder infection and now decided they are going to remove the whole right kidney. Has anyone heard of them doing this young?? i am so scared
well good news they didnt remove her kidney they did a surgery to unplug the uretha tube they believe they have a chance to save the kidney she is doing so good laughing and at home. She has a iv pickline in and i have to give her her antibiodics at home for 5 more days but shes home and its great...so in a year if the kidney still does not work than she will have it removed than...thank you all so much for your care and support
Aw so sorry to hear this, ask for a 2nd opinion mine has reflux in his kidney which caused it to be enlarged so its always good to have someone else take a look
Yes, if it is not functioning it will cause more problems. That being said,
I would definitely get a second opinion. My DIL who is in her last month of
pregnancy was told her baby has an enlarged kidney. When she is born
we will go one step at a time. May be a problem maybe not. Time will tell.
I would consult with a pediatric nephrologist and urologist. If she needs the
surgery make sure you have it at a childrens hospital. Please keep us
posted. Hugs and prayers out to you.
Is the hospital you are taking her to a children's hospital? If not, call the nearest children't hospital and get ahold of their pediatric nephrologist and tell him you need a 2nd opinion. They are very good at what they do.
I'm so sorry you and your family are going through this.
Dawn
I agree with getting another opinion.
I would get a 2nd AND 3rd opinion before do this to my FOUR WEEK old....and do it somewhere like UCLA. NOT another local doc in Yucaipa.
Oh, wow - I don't have any medical advice to offer, but I am thinking of you and sending you love. You are one strong mama. I recommend getting getting a second (and third) opinion. Take detailed notes at doctors appointments and move forward with someone you trust.
B.:
Welcome to mamapedia!!!
I'm not a doctor. This is something you need to talk with multiple DOCTORs about - especially nephrologist...here is a list of nephrologists in your area.
http://local.search.yahoo.com/search?p=nephrologist+kidne...
they can help you make the right decision for your daughter. If the kidney is not functioning properly - her little body will work harder to make up for it. They may be able to put her on the kidney transplant list. Who knows. ASK SEVERAL doctors. TAKE NOTES. Do your own research.
ETA: I can tell you that Loma Linda Medical Center is GREAT!! that's where my daughter was born.
I don't know about surgery this young but my daughter's biological brother was born with just one kidney and he's fine.
My son had emergency surgery when he was only 36 hours old, so I understand how you are feeling. We had no opportunity to explore our options or select a different surgeon. However, we were at CHOC and felt we were in good hands for the region. He had to have 2 additional surgeries and I had time to research doctors. We did change surgeons. Is this surgery urgent? If you have time to get a 2nd or 3rd opinion, do so! Loma Linda Children's Hospital is highly regarded, so take some comfort in that. Sending you good thoughts and prayers!!! Be strong for your baby girl and let family & friends help and support you! I know it's scary to have a baby go through a surgery, but they heal very quickly. My son is turning 5 on the 27th and it's hard for me to remember all we went through... it's such a distant memory. Hugs to you!
thanx for all the opinions im so worried its on for tommoroow...so what happens is if its not out she will have infection after infections....i am def not at a yucaipa local doctor im at loma linda childrens hospital we been here for 8 days so we seen a nuroligist and uroligist ( sorry about the spelling) and the primary here they been observing her this whole time and we have gone through 3 spinal taps to rule out menigitis its been a bad bad journey being a young mom as well ( 25) ..so i have done research and this surgery is very common just not in a month old baby in a 4 or 6 mnth baby i get to talk to the surgeon today this is so hard...has anyone heard of a 4 week old having any kind of surgery and being just fine ...google didnt have anyone ugh thanx again
Updated
thank you so much and i think what im worried about the most is coming out of being sedated so im glad to hear your son was so young and came out perfectlly fine. I guess the uroligist is saying its needed but i will def ask the surgeon today if its really needed.
