I am looking to see if their are any moms out there that have some experience with this diagnosis. My son is scheduled for the sweat test on tuesday but his labs and symptons are congruent with this diagnosis. So, any one out there that is dealing with it I would love to hear from.
My 2 yr old has CF. I'd LOVE to talk more with you. Please email me at ____@____.com. I'm in Ft. Collins.
I have a nephew that was diagnosed with CF when he was only a few weeks old. He has been going through therapy since then, He has to take enzymes at each meal and has to wear a vest 2 times a day that help to loosen up his chest. He has been doing phenominal! The are very careful and he is doing really well with the disease. Please let me know if you have more specific questions and I will do my best to help you with them. Hang in there!
My son's doctor works with a lot of cf patients and has a lot of resources. She's at National Jewish. They may be able to help you. I hope it all goes well.
I don't have any experience with CF, but I wanted to send some one-mom-to-another good thoughts, I'm sure either way, whatever happens, things will be fine.
Happy Holidays :)
