Any Moms Who Have Had a Child W/cortical Blindness

Updated on January 31, 2008
M.A. asks from Ville Platte, LA
5 answers

I am requesting this for a friend. She has about a 7 or 8 month old baby who has had lots of heart & neurological problems since birth. They have nearly lost her several times. As of now, she seems to be pretty much recovered from everything, except she now has cortical blindness. I researched a little on the internet, but there actually isn't much info on the net. She is looking to talk to someone who has dealt with this and/or overcame it. I do know that it's not always a permanent situation. So, hopefully little Mady will be one of the temp. cases.

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C.F.

answers from Lake Charles on

I agree, Families Helping Families is a great organization. They can link her with a support network and they usually have all the latest info about disabilities. My son was dx with a rare bleeding disorder last year and they were able to get lots of great information for me.

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L.E.

answers from Fayetteville on

I know nothing about her situation, but please tell her I will be praying for her. God can do anything and she must have faith He will heal her.

Also, I know how hard it is to have your husband overseas, I once was a military wife too so I can relate to you. Thank your husband from the bottom of my heart for being there protecting us. God Bless you too and guide you in your life and may God bring him safely home to you.

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D.

answers from Shreveport on

She needs to call Families Helping Families, I do not have the number , but sure it's in the phone book, they can connect her to some support groups or other moms that have the same thing in common.

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A.G.

answers from Shreveport on

these are things to remember: Materials, such as pictures, should be simple in form, high contrast (the colors of a picture or object should be different such as a yellow toy against a black background instead of an orange one), and presented one at a time.
Bright lighting can help a child see and attend to visual materials more consistently. Adjust the light both natural and artificial to determine what is best. Controlled incandescent lighting may be better than fluorescent lighting.
Give the child time to respond to the materials that are being presented.
Color vision is usually intact, and color can be used effectively. Yellow and red are possibly easier to see and can be used to outline numbers, letters, or pictures, to color code, or to attract attention to something you want the child to look at.
It is also important to keep the color of materials constant to avoid confusion. This also applies to visual cues in general which should also be consistent over time and location. If the child uses a red bowl at home and this is how he knows it is time to eat then the same should be done at school. Watch to see if the child has a preference for size or color.
Use a multisensory approach such as pairing an object that you want them to see with a sound.
Touch should be considered as a major sense for learning. Children with NVI appear to learn effectively through this sense.
Repetition and routines can help the child understand their visual environment. If changes are needed make them slowly to allow time to adjust.
Fluctuations in visual performance can be limited by reducing fatigue. Try working in short spurts, or divide a long task into shorter periods.
Reduce outside noise and other environmental stimulation that may distract the child.
Objects can be more easily seen when they are moving. This is especially true when they are in the peripheral fields.
Positioning is also important. The more energy being expended on holding yourself up the less can be used for seeing.
Language helps a child to understand a visual situation by adding meaning to it. Be consistent in the language you use.
References

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D.M.

answers from Johnson City on

I do not have a child with cortical blindness. However, I have worked with children with visual impairments through TEIS, Tennessee Early Intervention System. Your friend can contact their local early intervention program and they will be able to help her greatly. They will even send educators out to the home to not only educate the mom on her child's condition, but how to best help her child's development, and give support. If your friend is in Tennessee, the number is ###-###-####. If your friend is not in Tennessee, her state should have a similar program. She can ask her pediatrician or the local health department. Meanwhile, you are being a great friend by offering her support, as well.

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