4 In September and My Little Boy Is Still Not Speaking Well.

Updated on June 25, 2011
J.J. asks from Lawton, OK
6 answers

My son Alexander, who is almost 4, has a delay in speech. He has some words, but the pronounciation isnt quite right, and he repeats everything i say but it almost sounds - muffled? He counts to 20 in his not so right way and knows and sings all kinds of songs, his favorite is his ABC's and he sings the song all the time, but its muffled - "next time wont you sing with me" is "ooh ah ooh wah eee eee eee". When he was 1, I had a speech patholigist from the state come in and evaluate him. She told me that he had sensory input disorder, but after I did extensive research on it I decided that the diagnosis was incorrect. I thought it must have been his hearing but the hearing test came back perfect. The Dr. keeps saying autism, but my son doesnt display any symptoms, he shows and recieves love, full spectrum of emotion, doesnt have meltdowns, but the so called professionals look at his speech delay and tell me in whispered voices - autism, as if its a death sentence. I looked into "late speakers", in which children just start talking late, and its possible that this may be the problem. I chose some of the recommended activities and we have been working them in hopes that a light bulb will just snap on in him and he will start communicating. With all of the different prognosis and searching for an answer to what seems like an invisible problem, I got one more opinion last night which is worth mentioning. An old friend of mine met Alex for the first time last night. When my friend heard him speaking he said, " Oh, he is toungue tied, huh?". I asked what he was talking about and he told me that when he was young the frenum, the cord that is attachted to the underneath of the tounge, was so short that he couldnt freely move his tounge which resulted in his delayed and muffled speech, and when he was 3 the doctors snipped it. So we checked, and Alex has a fat wide frenum. I did some research last night on tounge tied children but I am mostly finding extreme cases where the cord is attatched to the tip of the tounge, which is not what is going on with my son. I know that whatever the problem is I need to address it now while he is developing habits of speech. When i watch him play with other kids it is clear that this problem affects more than just beiing able to communicate with me; when the other children realize that Alex isnt talking they leave him to play by himself. I am heartbroken and after 3 years of searching to no avail I am exhausted, yet, nonetheless determined and desperate for an answer. Please Help! Any advice from other Mothers who have had similar experiences?

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So What Happened?

- Wow... ok ladies, first off - thank you for your replies! I actually sought out mamapedia in the hopes of hearing from different mothers who had any experience with this type of thing. I was very scared to open about something this personal, as this issue affects my first child and has kept my heart bound in barbed wire for so long, so thank you all for your patience, understanding, and advice. I will convey that same patience and understanding in my reply, as I am compelled to address some of your concerns, and I would like to be upfront about my reputation to be long winded with advance apologies.
I completely understand the frustration that I received from some of you. Honesty, (even brutal honesty, wink) is helpful, and more than that - eye opening. Please understand that ASD was the prognosis only once. Of course no mother wants to hear that there are ANY problems with their children, and my first reaction to the results of the assessment was that I would do whatever was needed to help my son. I started research on ASD to learn how to HELP; I had no intention of disputing her recommendation. What I found out was that not only did Alexander lack most of the associated signs, but also that a diagnosis of this kind couldn’t even be accurate until the child was 5. And that is where our journey started - with subsequent 2nd, 3rd, and so on opinions. Also, to anyone reading this post, Please understand that I in no way meant to sound like ASD was a death sentence, only that i was disgusted when the Dr. leaned to me and whispered as if he was issuing a death sentence. I have had A LOT of experience with various degrees of this disorder, and I have also been part of the extraordinary research taking place right now concerning the connection between nonfunctioning or low functioning mirror neurons and Autism; research with the potential to possibly provide very real solutions to various disorders including ASD. In addition, the diagnosis of Autism that we received could be correct, but is it not ok to get a second opinion? And what do you do if the second opinion is as different as the third opinion. Do I just pick and choose? Was I wrong for questioning his Doctor? After all, we all make mistakes and I do not believe that my inquisition was the injustice I served my son. However ladies’, getting Alexander into speech therapy has been my number one priority since reading your responses. "So What Happened" is that I got in touch with a highly recommended speech therapist here in Lawton, OK, (has anyone from the Lawton area seen Richard Busby for speech therapy?), who allowed me to speak openly about Alexander’s situation and reassured me that despite his age, there are very realistic solutions available for his delay! In all honesty, I am ashamed that it took me so long to get my son seen by someone who could help, and even though my first inclination upon reading some of these responses was to delete my account and never return, I am grateful that they motivated me to take action! The excitement of a solution has not only renewed my hopes for the future of my son, it has also lifted an immense weight from my shoulders.

More Answers

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R.C.

answers from Boston on

Don't refuse services because of suggested reasons "why" he is delayed. From your description it seems that he is delayed in his ability to communicate and this is impacting his social development, which will impact his emotional development. Please access the services of your school system immediately. They may have summer services, but would definitely have services in September. And if services are not available this summer please consult with your pediatrician and insurance company to see if insurance would pay for speech/language services now. I'm so glad you wrote and sincerely hope you get him help, because this is an absolutely wonderful age to make significant progress. Best of luck.

2 moms found this helpful
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M.G.

answers from Chicago on

Regardless of what's wrong, your son needs help. At his age the local school district has a legal obligation to provide services. Contact them for an evaluation as soon as possible so that therapy can begin. The further you delay therapy the more behind he will be academically when he is ready to start school.

Also, my advice to you is to stop trying to diagnose your child on your own. While you are an expert in your son, you are not qualified to "label" him. Find a developmental therapist who can. You were given a diagnosis by a qualified professional, but decided that person was wrong. It seems like you clearly know something is different with your son but are afraid to hear what that problem is. Bring him to an expert who can give you answers.

2 moms found this helpful

S.L.

answers from New York on

Are you saying he's four and he has never received speech therapy?? do not worry about the diagnosis just get him into therapy ASAP. My son has services from age 2 to age 3 and made great progress. I refused to wait when services were available. It doesnt matter right now what the diagnosis is just get him as much help as possible.

2 moms found this helpful
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B.W.

answers from Seattle on

I agree with those who say your son should be getting therapy. However, be aware that expressive and receptive speech delays are NOT always autism. He could also have a speech delay or disorder. Don't believe anyone who tells you all late talkers are "on the spectrum" as this is NOT true. There is a great board for parents of speech delayed children who are not autistic: www.naturallatetalkers.com. Check it out. But yeah-he should be seeing an SLP regardless of the "reasons" for his delay.

2 moms found this helpful
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T.P.

answers from Tuscaloosa on

Oh, they have done your son a terrible dis-service. I'm a pediatric PT who has worked with many kids who also received speech therapy, and know many wonderful speech therapists. To start, age 1 is too soon for a speech therapy evaluation. Most won't even test a child until age 2, so that evaluation could very well be inaccurate. Second, SO many kids are falsely labeled with autism. If you believe, either correctly or not, that he doesn't have it, it is your right and your job as a parent to seek out a second opinion by a "developmental pediatrician" or other expert. If you believe he might be tongue-tied, that is a very legitimate concern. Have you mentioned this to his pediatrician? If you aren't happy with his previous assessment, try a new pediatrician or see if yours will refer you to an ear/nose/throat (ENT) Dr. Regardless of the cause, it is obvious that your son is delayed quite a bit and should have been receiving early intervention, which is free until age 3 and then passed on to the school district. If you contact the Special Education Dept. of your local school dist. they should help you with the process. This does not mean he will be in special education classes, but that is the dept. that handles therapists. My son was a late talker, but kids who simply talk late and don't have any other issues generally catch up quickly. A few months after saying his first words, my son was speaking in long sentences. Your son needs some help to catch up and I hope you can find the right person to help you on your way! Best of luck!!!

1 mom found this helpful
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D.S.

answers from Houston on

fluid in the ears. It makes what they hear muffled so it is going to be said the way it is heard. Mine also does this. He passes a regualar hearing test but we are going to do an abr on him. Now he has tubes but it was being blocked by wax which was being held in place by ear infections. We got that taken care of and we can understand a little but he is still very hard to understand. Almost everything he says comes out wrong. The only words he says that are right is mama, dada, buba, six and eight. he can only do his abc is singing form and I have to do 3 letters at a time and they are so jumbled it is not right. An abr is diffrent than an actual hearing test it test the brains response to sound not the ears. I have made alot of progress with mine but we are still working on it. go to an ent and have him checked. INsist on an abr. They will sedate him when they do it. It will tell you how much he can hear and if there is partial loss or full loss and if it is permanant or temporary. Mine can't get here fast enough but the red tape is taking forever. He may only have mild to moderate hearing loss. which on the 4 yr old test will only say he can hear if they did the booth test. Did he cooperate to do the headphones test? I am betting you only got the booth test which is accurate but not thorough sp?. If you have any more questions Im me.

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