My daughter was recently diagnosed with Turner's Syndrome. She is 14 and is starting to feel uncomfortable around her peers that have hit puberty. I am wondering if there is any advice on undergarments (bras and bathing suits) that may help her feel more comfortable?
After reading a couple of reviews I see that I have left out that hormone replacement therapy will be an option but not until she is close to the end of growing. When the growth hormone has her to about 5 feet tall then estrogen will start but it is a long slow process. Estrogen fuses bones therefore stopping growth.
i wanted to say im sorry for her feelings, its such a difficult time of a girls life at 14 as it is.
is there maybe something more directed towards those who have had a masectomy? i would think you would be looking for something very discreet more geared towards an adult. good luck
I do not know if you are aware of this, but Akron Childrens Hospital, Akron Ohio, has a wonderful support group for girls with Turners as well as parents.. This may be of some help to you.
I grew up with a similar condition and I think the best you can do is get her a padded bra and explain that everyone develops differently and that eventually she will have her turn.
I have a friend with a daughter who has Turners. They are going to start her on "pubescent" hormones when she reaches the puberty age to help her develope and then possibly estrogen after that, but not for sure. Maybe you should ask your doc about the "pubescent" hormones. Seems that she may be able to start those now. Sorry I don't have more info on the hormones...they haven't gotten that far in her care yet.
I wasn't familiar with Turner's Syndrome and had to look it up. I noticed that one of the websites mention the importance of estrogen replacement therapy, not only to develop breast/secondary sexual characteristics but also to maintain bone health and skeletal strength... Maybe its something you can mention to her doctor to see if estrogen supplements would be appropriate--and maybe even more successful if started at this age than if she were to start it later...
Here's the blurb I saw:
Estrogen replacement therapy has been used since the condition was described in 1938 to promote development of secondary sexual characteristics. Estrogens are crucial for maintaining good bone integrity and tissue health. Women with Turner Syndrome who do not have spontaneous puberty and who are not treated with estrogen are at high risk for osteoporosis.
