A.F.
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A.
I have a 7 year old son who is in the process of determing whether he has tourettes syndrome or not. Has anyone dealt with this disorder? Any Advice
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A.
First, let me COMMEND you for seeking help now. My son was not diagnosed until he was 13 and we had punished him, mimicked him, yelled at him for continuing to make those "awful noises" not understanding that he really couldn't help it. We had many apologies to make to him! This is what I know...a.d.d. and turette's syndrom many, many times go together. Many children have ticks and it's very common. It is determined turrette's when these things are present.
1. lasting longer than 1 year (even if intermittent, it does seem to come and go)
2. having at least one verbal tick (words, squeaking, clearing throat, etc)
3. having more than one tick
Medicine varies, but we have tried a medicine that is used to lower blood pressure. The side effect is drowsiness, so if the ticks are under control, my son elects not to take it. He is old enough that I let him decide if he wants to. (Really he is the one who suffers from being teased)
It seems to peak in puberty and many have it completely under control by adulthood.
Best wishes to you!
My sister had it and it took us a while to figure it out. Since you have other kids, it's best to keep everyone in the family informed. Let them know what's going on. My parents didn't let me know how my actions were affecting my sister and I would often aggravate the situation (unknowingly...you know how siblings can be!)
I know that my sister's tourettes is mild and can be controled with medication, but the medication can have undesirable side effects. I know that stress can aggravate the ticks and that some social situtations are uncomfortable.
I think that reassuring your child and helping them feel confident in themselves will go a long way to helping them. There will always be that jerk that will hassle your son...but there are ways to arm him against bullys and others who would be a problem. Going to councelling could work too.
Hi C.,
I was a Special Education teacher in CCSD for 11 years and had a student with tourettes. I retired from the school system and now have a business that consults and advocates for parents with children with special needs in the school setting.
You said they are determining if he has tourettes. Is a medical doctor or a Neurospychologist that is determining it?
What kind of advice are you needing? How is he doing in school? How is the school responding? Is it affecting him at home? How often does he have the problem? Do you evidence the problem more at certain times?