Son Diagnosed with Polymicrogyria

From what I know long tehrm effect vary greatly from person to person, it can be very mild symptoms to severe. Focus on how is doing now, and that can rule out thing such as severe mental retardation and the like.

"The diagnosis of PMG is merely descriptive and is not a disease in itself, nor does it describe the underlying etiology or cause of the brain malformation.

Polymicrogyria may in fact be just one piece of a syndrome of developmental abnormalities, because children born with it may suffer from a wide spectrum of other problems, including: global developmental disabilities, mild to severe mental retardation, motor dysfunctions including speech and swallowing problems, respiratory problems, and seizures. Though it is difficult to make a predictable prognosis for children with the diagnosis of PMG, there are some generalized clinical findings according to the areas of the brain that are affected."

Hello. I have a daughter with unilateral PMG. Please email me at ____@____.com
I would love to discuss our situation. It sounds like our children are very similar. I would love to hear from you.

Wow I was just reading this and while I do not have an answer I just wanted to say this: in this world we don't often hear about some of these things, but you are very brave and loving heading into a future with this. I wish you all the best.

This doesn't apply to me directly, nor will this case be the same as what you are experiencing, but you might want to check out schuylersmonsterblog.com - it's maintained by Rob Hummel, the author of Fighting Monsters with Rubber Swords, a book about his daughter. I believe she has different disorder that is often "lumped in" with polymicrogryria. It might be a good jumping off place to connect with other parents given the same diagnosis. Best of luck!

my cousins child had this issue with her foot. I dont want to scare you but i will tell you our story, in a VERY brief form...turns out we carry a mitochondrial disorder in our family and that can be brought out by toxins. her foot got worse and worse and after her last round of vaccines when she was 15 months she stopped walking together as the disorder was full blown. According to the neurologist had she not received her vaccines she may have not developed it at all, or it wouldnt be as severe. Please keep in mind this is a short version of this story, good luck

Hi D,

I just wanted to take a moment to let you know you are not alone! There are actually many of us! PMG is a disorder with several known causes, one of which is cytomegalovirus (CMV) infection during pregnancy. Other causes can be lack of oxygen to the baby during the time the brain is in early development, genetic mutations that are not hereditary, hereditary, parvovirus, and much more that they haven't even begun to know!

We have an extensive website at www.pmgawareness.org as well as a nonprofit organization. We have a "Contact a Family" program and I do know that we have several family members in the Houston area.

I hope you will take a moment to explore our website. Also, I would be delighted to answer any questions or to help you find a Contact closer to you. You can email me at ____@____.com.

There are also FaceBook support groups. If you need more information about them, please email me.

I hope you will join us in our fight to make PMG as well known as all the other major childhood diseases and disorders!

Best Wishes,

C. Byrge, R.N.
CEO
PMG Awareness Organization, Inc.
www.pmgawareness.org
Email: ____@____.com

Hi D,

My son is a carbon copy of what you described. Looks like it's been 4 years since you posted. What has been your experience thus far?