Seizures (Infants)

I don't know where you're getting her treated. I strongly recommend the neurologists connected with Children's Hospitla, especially Dr.Michael Nigro. He talks very straight and won't sugar-coat anything but will give you the answers you are seeking. He has a couple of offices in other locations too.

Try not to be discouraged. New medications are coming out every day. If your baby has only tried one type, ask about others. I am going to assume you are seeing a pediatric neurologist. If not, find one with a GREAT reputation. Ask a million questions. Let him/her know you want to be part of the process and able to make choices. Find out about the different meds and their side affects. By now you probably know there is no magical answer and you will have to make choices.

All that said, do your best to keep positive. I know you feel like you live life on the edge, (i've been there) constantly on high alert. It is exhausting. Do your best to get help so that you can have down time. Know that your baby could outgrow some of these symptoms and if in doubt.......get a second opinion. A second opinion is not a put down to your doctor. It's smart and responsible.

get a second opinion when she looks it looks like she sees through you. yes from what you described it is sezure. i would let them know also maybe seek a childrens neurologist also a second opinion.

find a support group in your area so that you have people to talk to that understand what you are going through......my exsil says it saved her sanity.....I think you can find one through the "epilepisy foundation of michigan" or you could google it or call your local hospital or ask your doctor to point you in the right direction........you shouldn't go through this alone (or feel like you are).....good luck

Our son has epilepsy too--we are lucky that one medication has controlled his for several years now. But here are some of the things we do that might help you too: keep a journal of when she has them, what she is doing and how long they happen for, ask lots of questions and educate yourself too.

Don't let your neurologist speak "medical" terms to you that you don't understand. It is important that you are involved with a pediatric neurologist and not just a "regular" neurologist. Communicate a lot with your neurologist--exactly what the medication is doing--what changes you see since your baby can't tell you.

Also what was helpful to us was understanding what the EEG told--it tells what kind of seizures are happening in the brain and then you can read more in depth on those kinds of seizures...she is also young and her brain is changing a lot every day. I will pray you find the right combo of meds and she will get her seizures under control. It is SO hard to endure--our son's last seizure almost 2 years ago was 12 minutes long and it was the worst 12 minutes of my life. <<HUGS>>

I would get another opinion from a different doctor. I would also look into what she may be eating that could be triggering the seizures. It's amazing what can sometimes be solved by changing diet. There is alot of info "out there" about how our food sources are causing MOST health issues. Look for a Naturapathic who is also an MD or a DO. They will look at your little sweetie's entire system rather than just her brain . Certainly I am not saying that I know what is going on, but I am all for investigating all the possibilities. When my oldest daughter was 4, she started having bladder infections. This isn't on the same scale as seizures, but the whole event caused me to not always trust what ONE doctor might determine. The urologist, after 3 years of antibiotics, kidney and bladder x-rays including putting a scope up through her ureathra :( endless trips to the doctor, I finally took her to a DO. He determined the cause was our well water. It apparently had some little "bug" in it that her little system could not handle that was causing the chronic infection. The urologist had told me she would just be one of those unfortunate women who would just have those bothersome bladder issues FOREVER. He ws known to be the best in town! Not true!! We gave her only bottled water and she NEVER had another infection. Something so simple causing such a huge problem. So I urge you to look a little further. All the best to you!

i so so sorry for u. unfortunately there is nothing u can do to prevent it. yes not all seizures involve spasm. all u can do now is pay attention to possible triggers. it could be lighting, too much action goin on around her, too much blinking lights, too many bright colors, too many people, theses are all triggers for seizures. before my pregnancy i worked with dysfunctional adults. a few patients were high seizure prone. as she gets older just keep her protected during episodes.

I want to echo the thoughts of other moms that YOU are your child's only advocate and you can ask a million and one questions to clarify everything the doctor says until you understand completely. If you have a doctor that is not willing to answer all your questions, find a different one. In this situation, you are the customer and they want your business, you are in charge, not them. I know its hard to know what to ask when you go in, so make a list and take it with you. Ask about new meds and any alternate forms of the medicine that your child is on (I find that Extended release forms of medication control my epilepsy better and leave me less drowsy than regular forms) until you find something that works. It will probably take many tries, but ultimately you can have a healthy, happy child and actually get some rest at night. Good Luck!

I have a 13yr old that was diagnosed with clonic-tonic seizures. I have been taking her to a specialist in K-Zoo. It takes forever to get her in and they dont explain very well! Always get a 2nd opinion if you feel you dont understand or if you just have that feelin... You are mom get a 3,4,5 or even 6 if needed! Good luck and god bless

Wow this must be very stressful. If you can video tape the periods of time when she has the seizure or lost look. Our friends son had multiple seizures and they realized it was a reaction to one of the vaccines, they had to rush to get an antidote shot to stop them with in a few hours. I do know of a great Naturalpath who has helped many many kids his name is Dr. Randy Tent in Novi his number is ###-###-####. He is also a chiropractor.He is a bit kookey but really smart. I have many other kids I have sent to him that had seizures and he was able to stop them.
he has also helped both of my children. You may have to wait for abit but it is worth the wait. or ask to be on the cancellation list. I would not see his partner although he is good to. I would wait for Dr. Tent.Explain your daughter is a 6 month old. Good luck