Seeking Moms Who Have Dealt with Pyloric Stenosis

Linda,
Yes, any steriod drug can cause emotional swings and behavioral issues. If the drug is absolutely necissary for the childs well being, then perhaps a flower essence would be helpful in calming their spirits.
A.
Energy healer and Reg. Nurse

Hi K.,
My son had it at around 7 weeks. It started when he was around 3 weeks old. The doctors said it was acid reflux even though we were there every week and the vomiting started turning a brown color. He eventually lost weight and went back down to his birthda weight before they did the test to confirm what it was. The annoying thing was we asked one of the doctors outright if it could be Pyloric Stenosis b/c my husband had it at as a child and they said no. The only thing the doctor did right was get us into Loyola for the surgery...however before the surgery he had to be in intensive care b/c he was so dehydrated. It was the most frightening time for me and very frustrating b/c it all could have been avoided had the doctors listened more closely to my concerns. Needless to say, we switched pediatricians after this incident. My son is doing well now, he's a year old but b/c he lost weight early on he's still a little guy and is only around 19 pounds.
Thanks for bringing this subject up!

Pyloric Stenosis runs in our family. Because of this I wasn't as scared as you may be at this point. When my mom and aunts had it and past family members they didnt perform the surgery back then. Our son had the surgery when he was born and it went really well. Everything will be ok. This isnt something that is rare. You have our full support!

My son had surgery when he was 8 weeks old!!! He is now 20 months old now. It was by far the scarest time of my life handing my first born newborn over to a surgeon... I had never heard of this until he had it.. Both your kids had it? I thought is was only in first born males? I am curious to know more!!

My sister's son had this and after losing a lot of weight had surgery for it when he was 6 weeks old. Things got better pretty much immediately after the surgery and he has never looked back. He is now a beefy football playing 10-year old. Babies heal so incredibly quickly.

K., way to go in trying to find other mamas who need to commisserate about this. Good luck with your boys!

My son was diagnosed with Pyloric Stenosis when he was 6 weeks old and had surgery immediately. Once the surgery was over, that was pretty much it. Luckily we were able to determine his problem quickly - he had a twin sister who was smaller than him and was starting to eat a lot more than him. He also had severe projectile vomiting and "coffee grounds" (dried blood in the vomit). Our surgeon explained the condition to us very well. It can indeed run in families but is not limited to boys or first born children (in fact, my husband's brother was the youngest of 6 and had it). There is a chance that our childrens' children may also experience it. However, if a baby girl experiences Pyloric Stenosis, the odds that her future children also will have it are extremely high. It is a terrible thing to go through as new parents because your child(ren) are so young and the last thing you want to do is see them go through surgery and 3 days in the hospital. But once the surgery is performed, your baby start to eat and grow into a strong little one who begins to take on the world without ever looking back. The only reminder down the road is the little scar that circles his/her belly button! It was interesting for us, because we knew a little about the condition because of my brother-in-law, but once our son had his surgery we began to hear from several people we know who also experienced the condition.

my son who is now almost 7 had it .. i figured it out when is was about 3 weeks old was told that i was a new mom and nothing was wrong with him and i was sleep deprived until people saw him throw up.. he had the surgery at 4 week and now is doing great..

Hi K.,
It has been 41 years since I went through the trauma of my third child having this happen, and the resulting successful surgery when he was 12 days old. Funnily enough, my husband's older sister had this when she was about three weeks old. In 1931 it was REAL TRAUMA. When she came home from the hospital, different family members took turns carrying her around for six weeks after the surgery because she wasn't supposed to cry. In 1966, I was nursing my son as soon as he woke up, holding him with the tubes still in after surgery. Alice and Rob used to compare "zippers" as Alice called her scar!

My first two girls, a year and two years older than my son, both were projectile vomiters, but not to the extent that Rob was. They were walking and still spitting up a lot. For the first week as a newborn, Rob didn't spit up any at all and I was thinking they had changed babies on me in the hospital, lol.

By the way, no one else in the family has had anything like this, not his two kids, nor any of my other grandchildren, nor any of Alice's kids or grandkids.

Steffi S. retired mom of 4 and grandma of 11

My oldest daughter had it and it peaked at about 3 weeks. Hers was borderline and luckily she did not have to have surgery. But it caused alot of issues with eating in the first year. She outgrew alot of the pyloric stenosis symptoms and is fine now. The only thing is now she has to go through some allergy testing because many foods make her sick. We'll see how this goes.

Are you sure this is it did yo have an ultrasound??? Did you rule out Eosnophilic DIseases????
J.

K.,

My dd was thought to have it and had to go through all the tests that check PS but came to find out it was something very different. But I do know for any one else who reads this that it is more like in boys then girls. It is a very stressful disease to deal with and I send all my hopes a nd prays out to all of you who are or did have to go through PD

M.

My son was diagnosed with pyloric stenosis at 3 weeks of age. He had surgery that day. He is now 7 months old and growing just fine, even though he still spits up a great amount. Both his pediatrician and surgeon have said not to worry about the spitting up since he is gaining weight. Did your sons spit up even after the surgery as well?

Interesting that I just saw this..my husband's brother had this and had the operation (he's now 34) and my newborn is now projectile vomiting. She's 4 weeks and a girl and I'm finding her throwing up all my breastmilk when she's had a full feeding. NOt sure if it's PS yet, I'd have to submit to an ultrasound and right now we are doing a "wait and see" approach. I'm curious to learn how you knew it was PS and how it affected your babies. thanks. m