Seeking Moms Who Have Children with Cystic Fibrosis "CF"

I found a couple of CF Support groups online that might be able to help.

https://www.cfliving.com/CFLiving/welcome.do?s_cid=0003&a...#

http://cf.conncoll.edu/

http://dailystrength.org/c/Cystic-Fibrosis/support-group

Good Luck... ;-)

Dear C.,
This is a difficult diagnosis. If you will write to Chris Wylie at ____@____.com you will find a lady well versed in CF. She has family members with CF and has made it a goal to help, education and offer support for patients with CF. She is a lovely sensitive woman who helps so many. Please send Chris an email, you will be glad you met her.
God bless your family,
K.

We used to watch videos or cartoons during therapy but truthfuly we spent most therapy times with both our girls screaming bloody murder til we were finished. Then it was hugs and kisses time. As they got older it got somewhat better but they both still hated therapy until the day they passed on.
As for the enzymes, I would sprinkle them in with baby food applesauce and feed it to them that way. Try to get it done in only one or two "bites" or the enzymes start to break down and give a bitter taste to whatever you choose to use. She will probably still try to chew them but will soon learn not to.
Best of luck to you and your family!

I'm not a ton of help, but have followed this couple, the wife just received a double lung transplant, and they are just a great inspiration. http://cfhusband.blogspot.com/ He asked for others with blogs to post theirs, there are several in the comments section of this link http://cfhusband.blogspot.com/2008/06/cfer-blog-roll-call....

Blessings,
B.
www.bellaamadis.com

Regarding the enzymes: just make sure she drinks water right afterward. It will rinse her teeth.

A friend of mine gave her son his pills in a spoonful of ketchup. Maybe try different things until she likes it, then it can be her special pre-meal treat!

Moms have used apple sauce and maple syrrup to put enzymes in.

I hate to hear of children who are ill and although I don't have CF I have to share something with you that is helping me tremendously.

Please let me share with you what I truly believe is the answer to all health issues, based on my own experience with it. Please read the whole story. Websites below.

I am a three time survivor of breast cancer, currently a Stage 4 with metastasis to my bone (not a good thing). We have had it under control with chemo for almost 2 years and while I am doing very well, my tumor markers have been on the rise again for almost a year which is an indication that the cancer is just waiting to rear it's ugly head again. I had to quit treatment in January because it was making me too sick....I was having a bad reaction to anything and everything they were giving me, even developed a reaction to IVP dye and steroids. I felt like God was telling me thru my body that I needed to go another direction but I didn't know what it was I needed to do....then by chance I opened my spam folder one day to clean it out. Normally I just delete everything but an email caught my eye, it said "from terminal cancer to health", even that I may have normally deleted but something told me to open it. I did and started checking into this technology that turns your tap water into a body alkalizer. I had know from doing lots of research on cancer starting in 1998 that all disease thrives in an acidic environment and we are acidic because of all the garbage that we eat and drink....even our water is acidic...even if it is purified. It's shocking! I learned that all disease starts as an inflammation, alkalizing neutralizes inflammation. This email had information about a machine that alkalizes the ph of your water so you can alkalize your body. I got excited about it and called the guy who sent the email and he told me about a guy who lived near me who had a machine where I could try the alkaline water, they call it Kangen, meaning return to origin or restoring in Japanese which is where the technology comes from where it has been in use since the late sixties where the incidence of heart disease, cancer and diabetes is much, much lower. It also makes your water a strong antioxidant and super hydrator, hydration is very important to those of us who have had radiation because that tissue does not retain water like normal tissue.

I began getting water every few days from this local guy and things started to happen for me that alone would be reason to own one of these machines.

Here are the benefits that I enjoyed within a few weeks of drinking Kangen water:

It forced me to wean almost completely off prescription pain pills that I had been wanting to stop taking but there is never a convenient time to go thru withdrawals, withdrawal is not fun. I began taking less and less and had very mild detoxing. I went from taking 3 to 4 pills a day to taking 4 to 5 quarter tablets a day. I hope to be completely off them in the next couple of weeks. This is huge for me.

I stopped taking blood pressure medication because my blood pressure normalized.

I had painful heartburn or reflux every single day for no apparent reason....it was suddenly gone.

I no longer craved sugar....also a huge deal as I have been a sugar addict from a young age. I literally would sometimes go to the store at midnite to get some candy to ease my craving. Sugar is bad for everyone but particularly bad for those with cancer because cancer feeds on it.
.

I knew I needed to have one of these machines. The guy I was getting water from was traveling a lot so I went without the water for a little over a month and in the time that I was not drinking the water, my blood pressure got high again, my sugar craving returned as well as the daily heartburn and I had to increase my pain pills again. I had to have my own machine so I ordered it and got it the day after my birthday last week, I have had my machine for exactly a week and am drinking my usual almost gallon a day. I am starting to wean off the pain meds again and all those other great benefits will return within a few weeks and only get better.

What I am really excited about is that the tumor marker test that was done while I was drinking the water in late March showed a significant dip, from 106 down to 91 and then went back up the following month when I was without the Kangen water. I can't wait to see those marker tests on the decline every month as my body becomes more alkaline, as it should be.

There are just so many health benefits it's incredible. Here is more info about the Kangen water and testimonials from people with every imaginable ailment from allergies to diabetes to CF to hepatitis to insomnia to kidney disease to cancer to MS to weight loss, even Alzheimer's and a myriad of others.

The websites have increasingly in depth information so check them all out.

www.h2o4health.net
www.h2o4health.com
www.h2o4health.info

Audio Library .::. Testimonials (product) from people with every conceivable disease.

Let me know if you want more information or want to try the water for yourself for a few weeks. Please pass this on to anyone you know who has health issues!
I will be happy to talk to anyone who wants to know more.
Thanks,
C.

I used to babysit 2 little girls with CF. Their mom used 1 tsp of grape jelly to give them their medicine.