Seeking Cleft Lip/Palate Parents

Updated on February 04, 2007
A.R. asks from South Gate, CA
7 answers

Seeking parents with children with cleft lip/palate

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R.P.

answers from San Diego on

I am the mother of a wonderful 2 year old cleft pallate little girl! Dr. Ralph Holmes is her cranial facial surgeon, she has had 2 surgeries and we are hoping is done for a few years at least.

have a great day

R.

i can be reached at ____@____.com

K.B.

answers from Spokane on

My son is two years old (just turned on Monday) and was born with a cleft lip. We go in front of the "Cleft board" in a week.

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D.R.

answers from San Francisco on

I am a mother of 2 children 6 years old and 2 years old. My 2 yr. old has cleft lip and cleft palete. I would love to share my experience with you...If you ahve any questions about it let me know. My daughter has had 3 surgeries in the last2 years and all of them have gone great.

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T.Z.

answers from Medford on

My son is 3 and was born with a UCLP, we go up to OHSU and see the team there they are awesome!

I would love to chat with anyone who has gone or will be going through this, i hate a TON of before and of course after pictures.

T.
Kaden 3

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M.L.

answers from Los Angeles on

I am new to this site. My son that is 3 months old has a cleft lip and palate. How is you duaghter doing? How was her surgerys?

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A.O.

answers from Los Angeles on

Hi A.,
My son is 9 almost 10 and was born with cleft lip and palette they said it was a pretty severe case. He had a very good surgeon and had his first surgery at 6 months then 1 year. He only had things like tubes in his ears and minor ear infections and the help of a speech therapist to help him in school. At the age of 8 he had his palette stretched for only 6 months which was like a retainer and then he had a bone graft recently on March 17th 2006 where they take a chip of bone from the hip and place it in the gum line. He was up and walking in no time and back at baseball. He is currently wearing a retainer and seeing a speech therapist and a crainofacial team.

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L.C.

answers from San Diego on

Hello A.!!
I am a parent to a 5 month old little boy with cleft lip and palate! And we see dr. holmes too. He is such a great person. we really like him. Shane is having his palate surgery in April... We were not aware of his condition until he was born... sometimes I feel overwhelmed...How is your daughter doing???

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