PLEASE HELP = What Do You Think? What Would You Do?

L., what a beautiful little boy! I'm not familiar with what the others mentioned but will research it more myself. As a nurse and seeing the video, you absolutely need to go to the appt tomorrow and go with your guns blazing! So many times I see patients come in for something, the doctor does a few tests and it's forgotten....except by the patient. Stay with it until someone finds an answer, this is your baby we are talking about!

As for seizures, don't rule it out yet. I've seen several different types to include screaming and hitting heads, to staring right at you and not hearing a thing. The latter has been treated with a pacemaker type device that helps to de-trigger the seizure. And trust me, pacemakers are not that bad. My 4 yr old son had his placed when he was 11 days old and doing fine. Good luck at your appt and please stay on the doctors until someone finds a solution. I have 3 children and yes we went through stages of wanting to sleep with mommy, but no screaming and no reactions such as what you have going on. God Bless and let us know how things go!

That doesn't look like a seizure. I went to school with a girl who had epilepsy, so I have seen my share. However, I do agree with you, that you must push and push to get an answer from the doctors. I frequently watch a show called mystery diagnosis. I actually remember one with a child who had similar episodes, I forget what the exact condition is called that he was finally diagnosed with, but it had to do with a gluten allergy. I'm not saying that's the issue here, but I would push. Have an MRI done, have him allergy tested, do whatever you can. And if possible, try to get some answers out of him on how he feels at the time he's having an episode, or can't get to sleep or whatever. Get all the info you can. Its seems like your documenting (or remembering) stuff well, but you should try to get to the details. Good luck, please keep me informed.

I dont get the connection with the youtube video. It looked like a nice little boy in front of a Christmas Tree. The waking up part sounds like night terrors. My 4 year old grandson has those if he has been kept up very late...his mom noticed the pattern.

Go to Dr. Tripp!!!! I have a 5.5 yo DS who has been diagnosed w/SPD...not autism, but similar 'features'. We have had 1.5 years of OT, 3 months of SLP, and EEG, (awful), and an MRI (awful)He is now in preschool w/an IEP and doing GREAT!!!
I've got to run now, but PLEASE PLEASE email me and I can give more info later!
M.

Hi L.,
You are the keeper of your children's health and well being. No one knows him like you do. Trust your gut... if you think things are not right they probably are not. Keep pushing and see a different doctor if you have to. You owe it to your sanity and the health of your family.
It is hard to say if the sleeping thing (him looking for you) is related to the "episode" or not. My daughter went from being the best bed time girl to the worst bed time girl!!
Seizures come in all shapes and sizes. The rapid blinking and head bobbing - I would be concerned about it too.
Good luck and keep pushing foward on this...
MB

L., e-mail me offlist, my son has SPD, Echolalia, petitmal seizures and is on the ASD spectrum. I will give you my number if you would like, I have been dealing with this for 4 years now, and do a lot of work in the field, who is your Neuro?

Take good care and know your not alone.
H.
here is Gage's blog, you have to go back to the beginning, and that will be a run down, most posts are short so not a lot of reading. here is the link.

www.allaboutgage.blogspot.com