Dear D. G.,
If you are able to go online, look up all that you can and read everything that pertains to the problem your baby girl is having. What city/town are you located in? If you are in Chicago or at least nearby, there is the Shriner's Hospital that works with children with orthopedic problems of all kinds. They are located on Oak Park Avenue in Chicago. They can talk to you about your daughter specifically. Also, they work with any and all children. They only work with children with orthopedic problems. In addition, there is Children's Memorial Hospital in Chicago, ###-###-####. Children's specializes in all problems/illnesses/diseases, that children might have or get. I don't have Shriner's telephone number off hand, but you can get that on the internet as well. You can even go to the websites of Shriner's Hospital and Children's Memorial Hospital to get a better understanding of what each hospital does.
I do not believe that it's too late for your baby to be treated no matter what the problem is. There are some remarkable things being done in medicine today and the treatments can even be classified as miracles. I say this because my son is currently a patient at Children's Memorial. When I became aware that my son was sick, I inquired at both Shriner's and Children's. We ended up at Children's because my son's problem was not strictly orthopedic.
Get a notebook and write everything down, including the date, time and name of the person you spoke to. Always ask to repeat something you don't understand and for the correct spelling of words you are not familiar with. You will learn a lot and you will become more informed about any decisions you have to make regarding your daughter.
Good luck and take care. I'll definitely include you and your daughter in my prayers.
S.