Others Who Know About Hirschsprung's Disease.

My daughter is almost 2. She is special needs. She has fought constapation all her life. They did a barriaum enima on her to test for Hurchsprung's Disease, but everything looked fine. They were even talking about doing a collostomy on her. It can be permananet of tempory. If you google Hurchsprungs Disease there is alot of info out there about it. I just hope that your son is seeing a good pediatric sergion that you trust. Because if you don't trust him then it will make it harder for you face what is going on or is about to happen.

Hi I am a 23 year old mom of a 4 year old Corbin and 20 month old Carson. We are from Texarkana. Corbin has CP we go to Temple for therapy. I don't know anything really about Hirschsprung's Disease, however with my son's hydrocephalus and him having a shunt because of it I know how it feels to be worried having to rush to the hospital. If you ever need to just talk feel free to look me up.
MYSPACE: http://www.myspace.com/113788490

Good luck!! -C.

Hi A.,

My son was born with Imperforate Anus but we were able to rule out Hirschsprung's. Because of this, I know of a couple of places that can help you with information and support. First, there is the PullThrough Network. They have a website with lots of information that I found very helpful to me. Also, I belong to a Yahoo Group called IA Parents. There are lots of parents with children with various forms of anorectal malformations that can offer advice and support. Another great help to me was the Anorectal Malformation Clinic at Texas Children's Hospital. My son is a patient of Dr. Brandts and she has really helped him with his ongoing issues. Hope this helps you out!

Take care,
T.

WEBSITES: pullthrough.org
http://www.hirschsprungs.info/htm/resources.htm
Yahoo group: http://health.groups.yahoo.com/group/IA-parents/

My brother was born with it in 1975 and had surgery a few months after he was born to remove all but 6 inches of his large intestines. To this day he is fine. He does go to the bathroom within 30 minutes of eating every time.

His first son was also born with it. He had to get 3 inches of his large intestines removed when he was a few months old, also. He is fine. He is 10 years old.

He has another son who was not born with it. I have 2 daughters who were not born with it either. I think it's more hereditary in males. No one else that we know about had it in our family until my brother was born with it first.

My mom would know more about it than me. Let me know if you have anymore questions and I will ask her.