Need Help with My Toddler

Updated on March 26, 2009
S.B. asks from Fort Worth, TX
4 answers

Hey Mama's,

I am primarily a SAHM with my amazing (almost) 4 year old little boy. He has multiple food allergies such as egg, peanut, shell fish and catfish. He has a slight intollerance to soy and oats, so there is quite a bit of food that he can not eat. In addition to that, he also has an Autism Spectrom Disorder and Sensory Processing Disorder, so not only is there food he can't eat becuase of his allergies, there is food that he simply wont eat becuase of his disorders.

The majority of his diet consists of grilled cheese sandwitches on wheat bread , french fries, chicken strips, pizza roles, and frozen taquitoes. Occationaly he will eat cinnimon toast, jello, pudding, doritoes, cheetoes, fruit loops, and dried cranberries. We try to suplament some vitamins by giving him milk, capri sun (because it is so low in sugar and is a great source of vitamin c) and V8 fusion for fruits and veggies.

Are there other any other moms out there with autistic children, or have children with allergies to help me find some new recipies??? Have any tips for introducing new foods. We try and try all the time, but he gets soooo upset and then wont eat anything else even familier foods.

My bigest concern is not only am I afraid that he is not progressing like he should be, but he is also going to be starting pre-k soon, and I dont know what I am going to do about making him lunches that not only he can eat, but that he will.

HELP!!!

Thanks in advance, I know there will be some great advice that will come my way!

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M.S.

answers from Dallas on

Dear S.,

You have quite a challenge on your hands. I highly recommend learning about a gluten-free and casein-free diet for your son. I have seen autistic children function better when following this diet. It will not "cure" him, but it might make a big difference. It will take some getting used to, but it can be done.
I had to prepare this diet in my house for a year when my sister was living with us. She is gluten intolerant and I am dairy intolerant. I got used to it. You can find cookbooks, I'm sure, to help.
For information about the diet, see http://www.gfcfdiet.com/

On another note, I am a yoga therapist specializing in children with special needs. I have worked with children on the autistic spectrum and their parents have seen positive results. You can read about me at www.yogapotential.com

Good luck!

Peace and Joy,
M.

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G.W.

answers from Dallas on

I don't have an autistic child nor do mine have any special needs. However I would suggest that if you can feed him fruit loops you can also probably feed him Corn Chex or Rice Chex. Or Corn Flakes. And capri sun is NOT low in sugar, it is just lower than some other drinks. A better choice would be sugar-free koolaid or even better, juice diluted with water.

I know he will be resistant to new foods, but it sounds like you are getting trapped into a cycle of only offering him foods that taste delicious (because let's face it - those things are delicious! but not so healthy for him). If you never offer him anything healthy he will only eat the non-nutritious foods.

All I can say is, you are obviously a really attentive and concerned mom. I'm sure he would never be in danger of malnutrition. So, If this were my child, I'd offer some healthy food and if he eats them, then he gets the yummy, familiar, not-so-nutritious foods. Yes, he will balk at this, but like I said, I am sure you won't let him go hungry. And his own tummy will probably rule out. When he is hungry enough, he will eat, even if he has to go a mal or two without eating. Even if he's stubborn, don't give him the yummy foods until he eats something healthy - even if it's just one carrot stick.

If your son is like the nephew of the other mom, the one who passed out, I would guess there is more going on there than just picky eating. Was he getting fluids? And, I'm not suggesting offering him ONLY healthy food, but just start giving him some of each.

I've done this with my kids for a long time and they are very healthy. Yes they like junk food too but more importantly they know that Mom & Dad are in charge of dictating the menu, not them.

Good luck with your son!

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D.S.

answers from Dallas on

I dealt with a huge list of allergies in my older two children. There are some good recipe books available for people with allergies, but I still often had to substitute for some ingredients that they were allergic to. I ended up mostly experimenting on my own and using regular recipes with substitutions. They ate very simple foods made from only a few ingredients most of the time.

My sister's son is autistic, and she dealt with both his allergies and extremely picky eating habits, just as you are. He would only eat Cheerios and a few other things. She would literally painstakingly stuff other food into the centers of the Cheerios, like nut butters, to get some other nutrition into him.

Other people are probably going to try to give you all sorts of advice that might work for some regular kids. (But frankly, with a very picky eater, little of that advice works....those people are usually blessed with kids who are easier to feed.) One common bit of advice that is NOT likely to work with a child on the autistic spectrum is the advice to "don't give him anything else except for the food(s) you want him to try, and he'll eventually get so hungry that he'll eat it." Well, maybe not! My sister tried this, and her son literally was starting to pass out from hunger after refusing to eat any of the new foods for two full days. An unconscious kid wasn't going to eat anything new!

Don't feel bad when mothers with less challenging children offer advice. Your son is unique and special, and eventually, you'll figure out what works for him.

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NEW ADDITION:
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Gretchen,

I recognize that you had very good intentions when you wrote this. You sincerely want to be helpful. But have you ever spent a few hours with a child who has an Autistic Spectrum Disorder?!? I doubt it, or you would know that they are very, very, very different from your children who do not have any special needs.

You said:
"If your son is like the nephew of the other M., the one who passed out (Diane's note: NEARLY passed out), I would guess there is more going on there than just picky eating. Was he getting fluids? And, I'm not suggesting offering him ONLY healthy food, but just start giving him some of each."

In answer:
YES, SOMETHING ELSE WAS GOING ON......HE'S AUTISTIC!!!!!!

Yes, he drank a normal amount of fluids (but would only cooperate with drinking certain fluids, mainly water). People who drink fluids but don't eat will still suffer the effects of no food intake.

The child isn't selecting "unhealthy" vs. "healthy" food. He's four. He's autistic. He has a sensory processing disorder. He's choosing what feels right to him in his mouth (his senses are all working as though the volume is turned up, including the sense of touch), what tastes acceptable to him (with a sense of taste that may be out of whack), and what he doesn't remember as making him feel bad (many Autistic Spectrum kids have digestive and allergy issues).

My sister has had to suffer all sorts of judgments about her being "controlling" (often from people who have never spent any time with her or her son, or are ironically trying to control HER), "neglectful" (she spends most of her waking hours caring for this child in very loving ways), or "uninformed" (she's done so much research, she could write books on nutrition and treatment options for Autism Spectrum, allergies, and more).

The fact is, every single one of these people were either uniformed, are under-informed. As you are. Good intentioned, but uninformed or under-informed.

Adding new ideas can possibly help no matter what one's background may be, but it is impossible to have much understanding about this problem if have neither a picky eater, nor a child with an Autism Spectrum Disorder. I believe that you mean well. However, sometimes well-meaning advice inadvertently hurts mothers who are already pouring their heart and soul into trying to help their special needs child.

The term says it all: their needs are special. Ordinary handling doesn't work for them.

S., you have an extremely tough job, and you are certainly giving your son a thousand acts of love every single day. Few mothers would have an easy time coping with just ONE of the issues you must manage with your son. (She wrote me about more of the challenges of trying to feed him while navigating multiple disorders that impact what he can eat.)
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Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

C.G.

answers from Dallas on

My son is allergic to milk, eggs & nuts. He used to be allergic to wheat, as well. Try smoothies. You can add raw spinach for some extra iron, etc. and it doesn't effect the taste much. They sell a good frozen mix at Costco- pineapple, mango, papaya and strawberry. I mix w/ soy milk & add spinach. You could use rice milk or almond milk. Can you sneak in tomotao on his grilled cheese? I've heard good things about Seinfeld's cookbook about sneaking veggies and fruit in. You can try sweet potatoe french fries. My son prefers these to regular fries and then you get another veggie. My son eats meatloaf (I make w/out egg) and spagetti and meatballs, grilled chicken, hamburgers, fish sticks but other than that I usually have to make something special for him. He has started eating soy butter on crackers. He's always loved soy butter & honey sandwiches. They sell peanut butter-like spreads: almond butter, etc that your son could probably have. He also will eat avocado, steamed broccoli (maybe you could add cheese to get him to eat it,) peas. We have an oatmeal cookie recipe that we all love (their pretty healthy.) I have lots of recipes if you want details.

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