The best thing you could do is call ECI(Early Childhood Intervention). I am in El Paso and the number is in the book but you can also locate them through the local education services center, which is Region 19 here.
They will set an appointment up with you to come to your house. They will evaluate your daughter to see if she is developing appropriately or if she could use therapy such as PT (Large Motor - sitting up, crawling, etc), OT (Fine Motor - picking things up, feeding self eventually, etc), SLP (Speech, Language development, Swallowing) and they can enswer your questions or help you find answers.
Spina Bifida has varying degrees of severity ranging from very mild physical difficulties to significant needs. Please call ECI as soon as possible, to set your mind at ease and to get her help that she needs.
God Bless,
K.