E.M.
Hi K.,
I have a 2 yr old that has all the symptoms without the diagnosis of Celiac (we had the biopsy, but it showed negative...often when they're so young --i.e. 13 mos old-- the damage wouldn't have shown up yet anyway), so we treat her as if she has celiac, as well as avoiding numerous other foods we know she is allergic to.
We have found tremendous nutritional support with Reliv nutrition as her main supplement, and I have spent countless hours researching and reading labels to find yummy foods that she can eat.
It's not easy, but it's so worth it to be able to give her enough food to grow on!
One thing that I can imagine is extra hard, is that your son has already been able to eat foods with gluten in them-- whereas, my daughter never has tasted them.
We feed her a lot of rice, buckwheat (even though it sounds like it has wheat in it, it's not wheat at all), corn, fruits, veggies, salmon, among some other things. I just found a way to make pancakes out of a Arrowhead mills pancake mix (at Whole foods) with no eggs in them.
Feel free to contact me if you'd like to talk. Sometimes it's encouraging to talk to a mom who's been there!
--sincerely, E.
PS: I'm also intolerant to Gluten, so I've been staying away from all the same grains that Valerie can't have. It's quite an adventure! And sometimes very discouraging.