My 4 1/2 y-o D didn't walk until about 26 months. She has hypotonia, also known as low muscle tone. After almost a year of therapy, her ECI therapist (who was otherwise horrible) brought a walker to her on the day before her 2nd birthday. Serena pulled up and immediately started walking loops around my kitchen/den. She had never walked independently before, and the look on her face was beautiful. I cried. Ask your therapist about a walker (looks just like an old-lady walker, just much smaller). It gave my Serena so much confidence, which allowed her to build the muscle tone she needed to walk unassisted. She ditched the walker 2 months later.
Her hypotonia also affected her speech, since her cheek muscles were weak. Her ECI speech therapist was great with her, and, when she aged out, she didn't qualify for any special services in the school district!
Serena's neurologist advised us to keep her in sports and anything active, to keep her muscles challenged. Now, the only sign of this disability is an adorable crooked gait when she runs!
Here's something for you: no one expects you to do this alone. I was blessed to meet another ECI mom just after we started. Our children had very different problems, but we were able to cheer each others' successes and cry together on the harder days. I would be happy to listen to you. God challenges us so that we can understand the challenges of others. You are not alone. I'm glad you reached out.
Also, I went through a strange type of withdrawal when Serena started walking without the walker. Suddenly, after 2 years of health problems and sympathy and attention from total strangers, my daughter looked "normal," and I felt like a part of me wasn't needed anymore. It was very strange and quite selfish of me, but I'm guessing rather normal. I think that most moms go through this when their kids leave home, and they aren't needed as much anymore. I felt like that on a smaller scale.
Okay, I'm now just baring my soul to a complete stranger! :) I hope at least some of my true confessions helped you out.
N.