I'm so sorry for your loss of Vincent. Grieving for the loss of one baby while trying to remain hopeful and optimistic for your surviving son is so tough. My heart reaches out to you because I have been there too. You stand there at Vaughn's isolette willing him to be strong and fight this NICU battle so he can come home; but, the whole while your heart is also breaking for the son you lost. I pray for strength and calm for you and your family.
I gave birth to twin girls 4 years ago at 24 weeks. They weighed a l 1/2 lbs each. We lost one of our daughters 9 hours after they were born and the other daughter spent 100 days in the NICU. Our survivor endured 5 surgeries while in the NICU as well as battling a life threatening infection. Several times during her stay in the NICU we weren't sure she'd make it. But, those little guys are tougher than you could ever imagine for a tiny baby. Our daughter pulled through it all (even a scare that she might be blind) and now she is 4 years old and you'd never know all that she's been through. She's been wearing glasses since she was 6 months old and she has a few gross motor and fine motor delays - but she's okay! She is actually ahead of most 4 year olds when it comes to her cognitive abilities. All this from a little one pound baby who the doctor's said would probably have many, many problems as she grew up. When we were in the midst of our NICU nightmare I could have never imagined that things would turn out okay. So, don't ever give up or think that just because a doctor says that something will happen (like our daughter being blind)that it will happen for sure - you just never know. It is hard to be hopeful when you've expereinced the worst thing a mother could ever experience - the loss of your son, but hang in there, it will get better.
There is an international organization devoted to helping families who have lost a multiple (twin, triplet, etc..) that I found invaluable. It is called CLIMB (Center For Loss In Multiple Birth). Their website is www.climb-support.org - they have tons of information on their website to help deal with the unique situation of having lost one twin. They even have such information as to how to write a birth announcement. Another great resource is their quarterly newsletter that contains stories of other families who have endured similar losses. I can't say enough good things about this group. Because of them I didn't feel so alone. I'd also be happy to answer any questions you might have or just offer support - send me a message if you'd like.
I'll keep you, Vaughn and your family in my prayers.
S.