Learning Disability? - Snohomish,WA

Updated on July 22, 2008
B.G. asks from Snohomish, WA
18 answers

My four year old's ECEAP teacher had a specialist observe my daughter because she's having a lot of trouble paying attention in class. She's 'good', not interrupting or bouncing off the walls, but not always (or rather, usually) THERE. She's cognitively tested 'off the charts', loves to TOUCH (everybody and everything) and doesn't follow conversations ... picking and choosing which words to pick up when others are talking, but has no trouble making her own needs known with a great vocabulary. They want me to start at a pediatrician that will analyze her past, present and make some plans for her future. I've been taking her to a family clinic since birth rather than a ped, and they kind of 'skimp' and haven't really given me a good plan for her hypoglycemia or addressed the concerns I had about her development in the past, so I agree with teacher.
BUT, due to some unfortunate events, my family is in a HARD economic spot right now. The bad parts: stress, worn out shoes and DSHS. The good: Great kid-bonding without lots of 'stuff', ECEAP preschool two years in a row and DSHS. I've been on the phone for two weeks trying to find a pediatrician who accepts new DSHS paitents, or find another plan to get her evaluated, and we've been shut-out. Any suggestions?
If it's the only way, I'll pay out of pocket to get her seen by somebody who'll be thorough and level-headed. I need action soon, though, as I'll be asked to make the decision to put her in Kindergarten or not after this school year.

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So What Happened?

Thanks for all of the feedback!
We're on a waiting list for an evaluation from Children's Behavioral Health unit. It may be a couple of months, but in the meantime, I increased my time in the classroom and decided to go ahead and register my kiddo for Kindergarten next year. I've been in contact with the Special Ed supervisor, and she's given me the assurance that the public school won't let her "slip through the cracks" no matter what the diagnosis is.
My preschooler is NOW talking about being a Kindergartener and seems really excited (a big change from a couple of months ago), and is verbalizing that she knows she "won't touch things" or "suck her thumb" in Kindergarten (guess she picked up on some of the concerns).
Thanks again!

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L.C.

answers from Seattle on

My advice, as an educator, is if she has a late birthday and is having trouble paying attention you should hold her out of kindergarten. She just might not be socially ready for KG and that's not a big deal at all. Hold her back know rather than later! If cognitively she's great and has the language skills then maybe it's just immaturity. Please don't rush into the whole ADD-medicate'em and send'em to school trap. I would start at making an appt with the doc. she saw last and ASK lots of questions. You have to be your child's advocate. Ask for a referral from your family doc. It's their job to help you "even if you are on DSHS". Don't let that be an excuse for them to give you lousy care. Your child deserves good care- you need to demand it! Good luck and it's good to see a parent care so much about their child.

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L.C.

answers from Portland on

I personally think that four years old is WAY too early to be making diagnosises about ADD or anything else like that. If it were up to the AMA, every single American would be medicated somehow. Please be cautious with this and maybe she just needs a little time to grow into herself. Try cutting way down on T.V. and sugar first and see if that helps. I would also be extremely careful with "detox" for children as suggested by someone else. I worked at a health food store for 2 years and have done detoxes on myself with great results. But these are NOT designed for kids. When she gets older she can choose to do a detox herself and really get some great benefits from it.

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C.M.

answers from Fresno on

I have a 6 yr old who is in specail Kindergaren and she has a speach inpedamint and refuses to talk as soon as she gets near her class.. She has what is called select Mute. She also dosesnt want to participate in class and never wants to go up infront of the class and kind of has to be taken by the hand to do stuff. She also dosnt want to tell anyone when she has to go to the potty when she is at school. Its kind of hard to get a child to do thing when they dont want to do it and when they dont want anyone to hear them talk. Belive me she talk alll the time at home and never shuts up also she knows what we are telling her she just dosent want to do it. I also Have her 12 yr old brother and he has a very hard time with word math problems and Comperhending what needs to be done. But of corse his birth mother did do durgs and drunk with him while she was pregnent but both him and his sister have a rear gentic problem that causes some of these problems

1 mom found this helpful
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K.L.

answers from San Francisco on

Hi B.-
I am both a special ed teacher, speech therapist, and mommy so your question runs right up my alley.
First of all, every state in the union is required to provide diagnostic services through the public school system for every child if they need it. Does your child have a case worker? Does she have an IEP? What you need to do is contact either the district or county in which your child attends school, and through them you will be able to set up diagnostic services. FOR FREE. It is the law. Often, pediatricians (while they are doctors) do not have the specific knowledge or diagnostic skills to be able to diagnose a child with special needs - talk to your childs teacher and find out who is in charge of special education services in your public school system, and contact them directly. Her teacher will play a very important part: it is her job to echo what you need and reinforce the fact that your child needs to be seen by specialists that are employed in every school district and county across the United States (speech therapists, occupational therapists, physical therapists, etc). She can then be evaluated, an IEP (individual educational plan) can be written up to address her specific needs, things to work on, goals for the future, and she can start receving services specific to her needs (all of this is free, and required by the public school system).
From what you have described, it sounds as if your child may be exhibiting signs of Aspergers Syndrome, which is a very mild form of autism characterized by some of the symptoms below:

- Not pick up on social cues and lack inborn social skills, such as being able to read others' body language, start or maintain a conversation, and take turns talking.
- Dislike any changes in routines.
- May appear to lack empathy.

***- Be unable to recognize subtle differences in speech tone, pitch, and accent that alter the meaning of others’ speech. Thus, your child may not understand a joke or may take a sarcastic comment literally. Likewise, his or her speech may be flat and difficult to understand because it lacks tone, pitch, and accent.

-Have a formal style of speaking that is advanced for his or her age. For example, the child may use the term “beckon” instead of “call,” or “return” instead of “come back.”
-Avoid eye contact.
-Have unusual facial expressions or postures.
-Be preoccupied with one or only few interests, which he or she may be very knowledgeable about. Many children with Asperger's syndrome are overly interested in parts of a whole or in unusual activities, such as doing intricate jigsaw puzzles, designing houses, drawing highly detailed scenes, or astronomy.2
- Talk a lot, usually about a favorite subject. One-sided conversations are common. Internal thoughts are often verbalized.
- Have delayed motor development. Your child may be late in learning to use a fork or spoon, ride a bike, or catch a ball. He or she may have an awkward walk. Handwriting is often poor.
-May have heightened sensitivity and get overstimulated by loud noises, lights, or strong tastes or textures. For more information about these symptoms, see sensory integration dysfunction.
-Have advanced rote memorization and math skills. Your child may be able to memorize dates, formulas, and phone numbers in unusually accurate detail.

Children with aspergers are often highly intelligent, and I have worked with several children who have tested beyond the "genius" score - sounds as if your little girl is super smart, but has deficiencies in other areas. Its important you get her services ASAP as she has already gone her entire life without them - early intervention is the key. If you know any parents in your area with children who have special needs, as them for a referral to a good pedicatirician or neurologist while you are waiting for your public services.

Good luck, and feel free to contact me if you need any more help getting things set up.

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B.V.

answers from Fresno on

Hi B.,

I am not familiar with DSHS, however...I would suggest calling EPU(Exceptional Parents Unlimited). I called them about my daughter who is 14, I am trying to get her tested for ADHD/ADD. They test children for learning disabilities, but only test from the ages of 1 to 11 years of age. They might be able to steer you in the right direction.

The Doctor's name is: Dr. Snyder ###-###-####

I wish you the best of luck in getting the help you need for your daughter.

~Barb

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L.R.

answers from Seattle on

B., I am touched by your story. I have an older sister with a 9 year old son who has been diagnosed with Asburgers Autism, a very slight form of autism that leaves a child very capable in a social and learning environment, they just need more focused attention. My nephew was lucky to have some great doctors, who were by the way DSHS, and some great teachers in a co-op program. I can get some more info for you from my sister, but I was also going to suggest a montessori school or the home school organization. I think both of those settings for learning are ideal for children with learning special needs. Have the doctors looked into your daughter having autism? It's not as scary as you might think, my sister has been able to handle their situation along with many other issues unrelated to her oldest boy. I wish you luck and feel free to contact me if you might have any questions I could answer for you. Take care!
L. Ramos =)

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B.G.

answers from Seattle on

Immunizations do not (anymore) contain mercury. It has been extensively studied and it has proven that immunizations do not cause autism. Otherwise, children who are NOT immunizated would NOT develop autism. However, some do. It is a VERY unfortunate coincidence that immunizations are given when children start to exhibit autism symptoms.

On a different note:
It sounds like your daughter may have Aspergers syndrome. However, I would explore the food she eats. MSG, dyes and artifical sweetners have a history of causing a range of reactions in people. Try feeding her nothing but "clean" food.... fruits, veggies, hormone free meat. Try this for a couple days and see if there is a change, but I would still have her tested.

Here are some websites to peruse:
http://www.allergicchild.com/food_dye_allergies.htm
http://parenting.ivillage.com/tp/tpnutrition/0,,3vzs,00.html
http://allergies.about.com/od/foodallergies/a/foodadditiv...

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N.S.

answers from Bellingham on

Hi, I have a daughter with autism and we just moved to Skagit County WA from Montana. We're having to repeat doing the things we did in Montana for my daughter to get the same care here. You just have to jump through the hoops. I got lucking and called a pediatrician office in Mount Vernon and they said they took DSHS. Perhaps you could ask the school for recommendations. Your Family Dr. might just need a little convincing from you that she needs this. If your family Dr. can't do it, maybe they can refer you to a spealist who can. In MT the school said go to the CDC in Missoula to have her evaluated or take her to "Dr. White" a neouroligt in Helena, so that's what we did and that's how she got diagnosed with autism. Here in WA, I'm not sure if they have a CDC which would provide you with an evaluation, but I am pretty sure they have clinics for children with disabilities in Seattle that you can find on the internet. Very strangely, I had to tell the teachers not to put my girl in kindergarden this year. It was so strange because my daughter is right at the cut off point to be chronologically old enough to go to kindergarden. It feels like I have to shout "She's already behind, stop trying to push so hard, let's get her the help she needs now!" You know your daughter, and you'll make the right choice.

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J.A.

answers from Seattle on

I don't know if anyone mentioned the possibility to you, but at the age of 4 my daughter started exhibiting the same behaviors as your little girl. Fast-forward 5 years and now she's been diagnosed with ADHD. Attention Deficit Hyperactivity Disorder (they don't call it ADD anymore). She isn't bouncing off the walls, but she can't pay attention to save her life and doesn't listen well when others are speaking. That's where her hyperactivity comes in. Anyhow. We're trying behavioral therapy right now to see if that works. If not, then medication is unfortunately the next avenue. Good luck to you and your little girl!

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N.M.

answers from Los Angeles on

Hi!
I dont understand the ECEAP or DHDS, so please forgive me if you've gone this route. Have you checked with the school district. They must send someone to evaluate her, if you request and if found that she needs assistance, they have a wonderful program. I have a 6 yr old who is visually impared and started with the MVUSD since he was 5 weeks old. If I can help further please email me. N.

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C.A.

answers from Fresno on

Although I can't help with giving advise for a Ped, I do have one diet tip for your child's concentration.

I have found that diet can play a big role in children's behavior. Of course, if you don't have a lot of money, it is really hard to cut out all the artificial flavors/colors, yeast, sugar and wheat; there isn't much you can do except NOT give them extra junk food. So, here is one big help: Mocha/coffee. It is a natural help to even the most "normal" child that needs to settle down and focus as well as a natural replacement for drugs used on ADD kids.

The recipe I use is roughly: 1 tsp of sugar free (Splenda) chocolate flavor syrup (for coffee), 1/8 cup coffee with half-n-half, 4-6 oz milk, over ice. Of course, like any recipe, you need to mix and taste. Start out creamy and as they get used to it you can lighten it up with more milk and less half-n-half.

It is recommended to give once in the morning and again after lunch. (I send it to school with lunch.) Sometimes I will give a few sips to my daughter at dinner if the squiggle bug has got the best of her. (She is 4yrs; and is not ADD, just is sensitive and easily excited, as well as has some allergies).

The amount to give really depends on the child. For mine a half of glass really helps her just calm down, focus, and listen a lot better.

Don't give up. You'll find what works for your family.

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K.S.

answers from Seattle on

Fish oils with DHA are excellent for developing brains and do manytime help with LD. But you must be consistent and give it to her every day. You can actually get DHA chewables at Fred Meyer and liquid fish oils with flavors like lemon. Usually helps settle hyper kids as well. Used commonly in Europe for LD and post partum depression successfully.
K.

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L.W.

answers from Spokane on

Eceap should have a resource list of agencies that will help you with evaluations..if not the local mental health agency will and they take DSHS. The most important thing is that you be assertive with either your current family practice provider and tell them exactly what you want done or they will let everything slide. I have a daughter that is hypoglycemic and one that is diabetic the DR. tried to shine us off when I told them there was a problem. I had to become the mother bear and do what ever it took to get the right test done to get the right diagnosis. When it comes to learning issues they try to sweep them under the carpet even more. Another option is to contact your local university, they may have a program that will evaluate your child, the students who are learning to give these evaluations need someone to work with, especially if they have a education department or early ed department. Hopefully this will help. good luck.

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L.R.

answers from Fresno on

What I would do is enroll her in kindergarten. When she gets there, make the school test her. It is free. They have to make accomodations in class for her too. What school district will she be in? First of all, make sure that you request what you want in writing. The school has 30 days to respond by law. I also suggest calling Exceptional Parents Unlimited. They have what is called "advocates" there and that service is free. You go in and stress your concerns and then they will help you through the testing and meeting process. Going through this process can be extremely stressful and if you do not not the special education laws, for example what is the difference between and IEP and a 504. You as a parent need to know your rights. Also, you need to be an advocate for your child. Because if you won't do it,nobody else will. When you request testing for your child, state your concerns. If you have any more questions, feel free to email me. I have lots of practice as my child is ADHD and Asperger's Syndrome which is on the high functioning end of autism. He too is extremely bright. A lot of people do not realize what kinds of services a school has to offer parents. Of course they are not going to come out and advertise free testing for your children. Good luck. L.

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P.W.

answers from Sacramento on

You are a very eloquent writer! I know some folks at the local university hospital who would know what to do. I have no idea where the city you live in is, but if you're near a university hospital, go talk to their pediatrics unit. Hospitals should take DSHS, and the doctors working there can make appointments to see you (you don't have to come in through the ER). University hospitals have resources that regular ones don't, i.e. grad students and lifetime academics who may have worked with this issue before. It's a place to start.

It doesn't take lots of *stuff* to be a great mom! I hope you find some answers soon.

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Y.M.

answers from Portland on

My suggestion:

Try contacting Easter Seals to investigate Occupational Therapy.

Easter Seals, or Children's Guild (I think both names are National), accepts insurance through that State as well as private insurance.

Perhaps an occupational therapist can evaluate her and see if she's "checking out" entirely or if she just has a hard time paying attention.

Furthermore, if she has hypoglycemia.... I'd have her checked for diabetes. Blood sugar levels in the body can cause a person to "check out" as well.

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N.K.

answers from Los Angeles on

Have you checked with your local Regional Center. They should be able to help you get your daughter evaluated. If you are in the San Gabriel Valley you would probably need to call the East Los Angeles Regional Center or check out their website. Also, after age 3 (I think) your local school district can evaluate your child. My son is mildly autistic and my pediatrician told me to check with my school district. They had their psychologist evaluate him and he was put in their preschool. Since then he has started Kindergarten, receives occupational therapy and is doing great. All of this does not cost anything. It's our tax dollars at work =) Take Care and Good Luck. Feel free to contact me!

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J.K.

answers from Portland on

i have a 4 yr old, and he is about to start EISE, which is early intervention special education. its free thru the school district, and if your child qualifies, they can either go to the class run by the district (my sons is at a school not far from me) or you can keep them in preschool and they have someone that works with the preschool. my son has trouble with personal space and sitting still, and its really cool because they work with you on what issues your child has so they know what to work with. i just called the district in my area and asked for the early intervention number. you can always look into it. i totally understand about scraping by, which is why i'm so glad its free thru the state. good luck!

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