Lamictal?

Updated on October 23, 2012
R.M. asks from Cedar Park, TX
4 answers

My son's neurologist wants to give him Lamictal? Have any of your children tried this medication? Please tell me your experiences.

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A.A.

answers from Spokane on

My step son has been taking Lamictal for approxmiately 6 years. He had an epileptic seizure when he was 13 due to a blood clot (AVM) on his brain. They removed the clot, but the seizure disorder continued. He has gone on to have several more seizures, mostly when he forgets to take his meds.
The Lamictal itself has a few side effects, the biggest one being tiredness. But it is really hard to judge how much of that is teenager lethargy, and how much of it is actually the medication. It is a name brand and expensive, I hope you have good prescription coverage.

2 moms found this helpful

J.S.

answers from Hartford on

My middle daughter is almost 10 years old and in 4th grade. She has been on Lamictal for Absence Seizures since she was in kindergarten. She was put on it because she also has migraines and one of its original uses was for migraine sufferers. In people who have certain behaviors due to their Autism, it's a good fit because it can help control the behaviors without affecting the personality or core of the person taking the medication.

She hasn't had any negative side effects at all. Her appetite is poor but it was already poor before the medication due to her sensory issues and digestive issues. It actually helped her appetite even though it still stinks. She doesn't have any tiredness issues and in fact even though she takes it before bed time she still requires a small dose of melatonin at night to fall asleep.

That all said, I do keep a close eye on how well the medication is working. If she's overtired, her blood sugar is low, she gets over-stimulated, overly upset, is around strobe lighting, has a growth spurt, then she's more likely to have clusters of seizures. So if she has more than a few in between our every-1-to-3 months appointments and had a significant enough growth spurt, she would need a boost in dosage. The preference, of course, is to maintain her on as low of a dose as possible.

We have her on the Lamictal XR, which we only have to give her once a day. They don't make it in generic form. That means our pediatric neurologist has to write on the prescription every time that the name brand and XR is medically necessary.

The only other thing that would be a red flag to look out for is if there's a sudden red rash that crops up for no apparent reason, especially on the trunk area. So far, in 4/5 years, nothing, or we would have to take her off immediately instead of titrating down.

So all that to say that we've had a very good experience with it.

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D.B.

answers from Beaumont on

My 7 year old son just started Lamictal. His pediatric neurologist put him on this medicine because it is also used for individuals with bi-polar. My son has been diagnosed with Asperger's (type of autism) and bi-polar. So the Lamictal helps with his mood swings significantly. He does take his twice a day and we are working up to a stong dosage of the medicine. I hope it helps him to stay calmer in all situations that stress him out.

R.W.

answers from San Antonio on

My son hasn't taken this medication, but I do. It works GREAT for me and helps control my Bipolar.

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