Jeuvenile Reumatoid Arthritus

I think you should read the OmegaRx Zone by Barry Sears (you can check it out from the library). He talks about how really high doses of ultra-pure pharmaceutical grade fish oil can work miracles with pain, inflammation, arthritis, auto-immune disorders, and more. I learned a lot.

Also, just yesterday I was checking out an MD that specializes in alternative treatments and has a clinic in my area (I don't know where you are, but he's in Carson City, NV). I think it's called the Nevada Center of Alternative and Anti-Aging Medicine. His name is Dr. Frank Shallenberger, and he's written a book, so they have a lot of out of town appointments. Anyway, check out his website www.antiagingmedicine.com. He does "Prolozone therapy" for joints that supposedly corrects the pathology in 75% of cases. It might be worth looking into at least. I know there's just so much information - it's hard to know what to do. Good luck with everything. I hope your sweet daughter gets well soon.

J.,
I was diagnosed with JRA when I was 5 yrs old. I woke up unable to walk with severe pain. I had a biopsy on my knees, and was then given the asprin therapy. This was in the 80's, so I am surprised they have not advanced their treatments. I think the things you have choosen to do are much better than the western therapy. Lets hope all these natural things help her body to heal, and work better.
I will tell you mine got better pain-wise, very quickly (a few months). I have some joint pain in the winter, and my hips and knees pop sometimes. My most noticable complication in adulthood was during pregnancy. My joints were loose already and that relaxin hormone made them very loose. so I excersized to strengthen the muscles, and that worked great. I have never been on any medication either.
So keep her on a good diet, and excersizing. I hope things improve for you both.
T.

If food allergies are involved, I highly recommend National Jewish. Our doctor has backed my son's meds way down and he is doing better than ever. He tries basic, natural things and then meds if necessary. We're very happy.

Hi J.
My name is Karolina and I am from Sweden. My daughter Julia is four y old. She is diagnosed psoriasis arhtritis. She is very ill. Have terrible pain in her whole body. But I think shes got wrong diagnos. I think shes got Lyme disease. Because she have terrible headace and other symtoms that doesnt fits with arhritis.We will see a doctor in Scottsdale tomorrow, you have the best doctors here in USA.
But I will give you one advice that we used in Sweden. We dont give Julia red meat, only chicken and fish. "Like chicken sausag". And we also take her to physiotherapist with warm bath whitch she is treated with once a week.
I hope you can get something out of my mail. You are very welcome to contact me.
Best Regards
Karolina Knutsson
____@____.com

J.,

I really don't know much about juvenile rheumatoid arthritis, but my brother in law and mother in law were both recently diagnosed with it. I've read that symptoms of rheumatoid arthritis can mimic the symptoms of Lymes disease, so you may also want the doctors to rule out Lymes disease as well, because that's curable.

B.

Have you tried Chiropractor? It s amazing what they can do.

Hi J.! All I can say is Juice Plus. It is a whole food based nutritional product. It comes in gummie form for children and would be great for your daughter. It has the scientific research behind it and is shown to improve immune function.
I'd love to share it with you, I live in Arvada! Please visit www.lulujuice.com
Let me know what you think!

Hi J.--

I didn't read all the responses so sorry if I repeat something. We have a doctor that has a diagnostic tool called electral dermal screening (EDS). It uses the acupuncture points on the hands and feet to determine the health of each organ, system, etc. In essence it is a diagnostic tool that takes human error out of the picture (I'm guessing your natural doctors use muscle testing??). Basically, the computer is calibrated so that when a system is balanced it registers between 40 and 60. Anything below 40 is underfunctioning (not working hard enough), and anything above 60 is over-functioning (working too hard.) Once you get a baseline there is a plate connected to the machine that you can put your supplement on. The machine measures the energy of the supplement with the energy of the person being tested and will tell you if that particular supplement balances the system or not. That way you are giving the body exactly what it needs rather then guessing at it. It takes the guesswork totally out of the picture. My son had severe food allergies as a baby and this machine made it so we could test him without poking, prodding, or taking blood. Frankly, I don't know why every doctor doesn't have one. I think it could prove very helpful for your daughter because you would know exactly what system was out of balance and what she needed to re-balance it. If you are interested send me a personal email and I'll give you the doctor's number.

Good luck!
J.

Since you are open to alternative treatments, you may want to look into something called NAET. Go to www.NAET.com to find out more. It's a technique usually performed by chiropractors - I know that sounds odd - but it can't hurt, and if it helps, all the better! I was treated for hypoglycemia and it worked. I also know someone whose daughter was treated for celiac disease, and she was cured of it.

Good Luck!

Hi,
I am sure you are laready aware of this with such medical support, but I would definitely look at all food allergies. Very often automimmune responses are triggered by food allegies causing inflammation in the body. This inflammation then leads to systemic inflammation thrughout the body, often starting with issues such as joint pains or eczema. I would do, although hard with a child and an adult for that matter, an elimination diet. Start by eliminating foods such as dairy, then after 6 weeks reintroduce it and see if the symptoms are made worse. You can try this with all of the common allergens. I know you said low gluten diet, but is she avoiding all gluten or still having some. If she is having a gluten allergy, any amount will keep the inflammation triggered.
Good luck and I hope you find the answer soon.
In best health,
T. Sobel, Dipl.O.M., L.Ac.

Where do you live at? My son was diagnosed with JRA in 2003 when he was 4. I tried the different approaches and found that they didn't work and things got worse. Make sure that you are having her eyes checked every 3-6 months. If the inflammation gets out of control then it is almost impossible to get back under control. We had to go a heavy duty route just to get my sons vision back. If you are in NV then I can give you the name of my sons doctor. We were in AZ and couldn't find a good doctor there. If you want to contact me my e-mail address is ____@____.com

Good luck,
K.

Hello J.!

I am so sorry about your daughter. It sounds like you all are brave and working hard on her health.

It is because I saw what happened with a friend of mine (Renee), that I found out about a company and product line called Reliv. I was interested in it because my aunt has MS, and had asked me to be on the lookout for her. (I am from Holland, that's where my aunt lives).

A long story short: I've been using the products since August 03, they are life changing. They have general health products, as well as functional formulas, and a super product for joint issues (Arthaffect).

Please don't hesitate to call me: ###-###-####. I would love for you to listen to my friend Renee, you'll get answers to all the questions you might have.

Kindly,
I.

J.,
I was forwarded your email and I thought I would respond because I was diagnosed with RA when I was about 12 and I am now 24. I have ventured through the many alternatives medicines and have experience taking many of the traditional medications. I really just wanted to let you know that it is worth trying all that you can alternatively, but don't become to discouraged if some of the things that you try aren't successful. I feel that the best advice that I can offer you is that everyone's body is different and everyone's RA responds differently to different treatments. However, it is extremely important to keep the RA and inflammation under control. RA can be very damaging and can react very quickly. I would be more than happy to share with you my experiences and life with RA in more detail if you would like. Just send me some questions about what you are interested in. Feel free to email me at ____@____.com

I'm not sure about JRA, but i do know a little bit about the steroid shots... I personally would not do those injections, but there are more gentle ways to get the same medication without an injection. I have really bad carpell tunnel that turned into tendenitis after my baby was born. The doctor wanted to do the steroid injections but i refused and ended up going to a physical therapist. We tried all of the "natural" remedies but they did not work. So, instead of getting injections i am recieving steroid treatments by way of electrical currents. It definitely is milder and less painful than injections but is still very effective. My advice would be to look into that option if you can.

HI J.,

I am a SAHM of a one yearold(next month). I don't have experience with JRA but I was wondering what vitamins and suppliments you are using. I do believe natural is a great approach and you want to be sure you are givng your child the best suppliments possible.

Sincerely,

D. Kirk

I have been taking a new product called Zrii which is fully endorsed by Dr. Chopra and his wellness institute. I would be happy to get you some product to try with your daughter. It's a great tasting fruit drink without chemicals. 3 oz daily and it's been proven to help the auto immune system. Go to www.amalaki4all.com and read the tesimonials of those who have personally experienced this fantastic product. If you choose to sign up, I would appreciate you including my Independent Executive # ###-###-####. If you have further questions, please call my cell at ###-###-#### and I would be happy to talk to you without any pressure whatsoever.
Look forward to hearing from you.
Penny Pew
St. Johns, AZ