I Need Some Advice Ladies Please.

It's easy to tell someone not to live in fear, but when you're the one who's gone through it, it's a completely different story. Febrile convulsions/seizures are scary - especially when you don't know what triggers the fever to set-off the event.

I might recommend starting slowly to introduce her to her room to help make the transition easier for all of you.

Initially, I'd put her in the bed and perhaps have either you or DH sleep in the room with her (~1 week). Then, move to staying every other night or long enough for her to fall asleep and for you to feel safe.

I'd recommend keeping the door open and putting a baby monitor in. If you can find a used video monitor via eBay, Craig's List, etc. that might help vs. the cost of something new.

This next suggestion is going to sound so silly - but do you have pets? Especially dogs have a 6th sense we don't have and are known to alert people when there's a health issue for a family member. My in-laws inherited a canine companion who'd been trained to assist a man with epileptic seizures. It may help provide you peace of mind, and it may be something that there's assistance with to cover costs if it really is a valid health issue.

Good luck!

You cannot worry and hover over every little thing that MIGHT happen. Do you keep her from going on swings because she might fall off and break an arm? Kids need to be kids.

With that said - a seizure doesn't hurt them. What if she has a seizure while she's sleeping and you aren't there? Seriously. Would it be ANY different if you were there? No. She would still have the seizure. You being there changes NOTHING. It only upsets YOU, which in turn upsets HER. When they happen, she is unaware it is happening, it doesn't hurt her.

If she gets sick in any other way, she may or may not call you, cry, come to you or be generally restless. When she is sick, the thing she needs most is sleep anyway. When she has a fever, monitor it and treat it, but you can't live your life (and hers) around what MIGHT happen IF she gets a fever. You deal with it when it comes.

Do you have health insurance? Does your daughter see a neurologist for her febrile seizures? I would call the office and talk with the nurse regarding your concerns. They deal with these issues all the time and may have some good solutions for you. That is what they are there for. If your daughter is not seeing a pediatric neurologist, I recommend that you take her to one. If you do not have insurance, try to apply for insurance through your state, a social worker can help you do this. Another thought, if you do not have a neurologist yet, call the pediatricians office or the hospital that cared for her when she had her seizures. Someone should beable to direct you to the appropriate resources.

Best to you.

Get a bay monitor, I know some have a camera but I have no clue about costs.

Febrile seizures are quite scary. My son had one when he was a year old. But it wouldn't happen unless he has a fever. And yes, I know that fevers just develop out of nowhere, but you have to let her have her own room. Otherwise, she'll be with you forever. I assume you let her go to school without you and she could have a seizure there... so it's the same thing about being in the next room over. If you are worried, get a sound monitor or leave your doors open. You'd probably hear if she had a seizure.
She may grow out of them. My son is 4 and my pediatrician said he likely wouldn't get febrile seizures any more.

Check with the doctor and see what they advise. If they say she is okay, don't worry as much. Removing the door is a great idea, I would at least do that, and use the baby monitors. For the rest, look in pawn shops, all you really need is a tv and a video recorder, drill a hole in the wall to hook it up with a long cord, erase the tape every night.

If you continue down this path, you will make your daughter crazy.
I understand your fears. By now you must realize that febrile seizures
are benign. If she gets sick during the night you will know it. Sounds
like you are smothering her. You cannot live your life thinking something
is going to happen to her. Please try and relax. Enjoy your daughter.
You are wasting good energy on the negative.

Wow...that must be really, really scary. I'd still use the monitors you have and give it a chance. In the meantime, sell some stuff to save money for a video monitor or save a few dollars a week. Look on freecycle and craigslist for a used O.. I sold mine on CL for $25.
It might help you feel better to pray with your daughter every night before bedtime. And say a silent prayer of protection for her. God will protect her.

I don't blame you for being fearful. I think you are being smart. I like the idea of taking the door off. It'll be okay. You obviously care enough to go and check on her whenever that mommy alert strikes.