I Need Help. ~ This Is About Childhood Diabetes.

Updated on July 03, 2011
M.. asks from Nashville, TN
12 answers

My 9 year old son MIGHT HAVE diabetes.

For a few weeks now my son has been having blue lips in the morning when he wakes.
So I just thought "well I guess he slept too long and he needs something
to eat and drink." This happened a few times.
On Tuesday of this past week my son had light blue lips throughout the day and I kept
feeding him and giving him orange juice to drink so that his lips would turn back to pink.
His lips were going from light blue to light pink to fine again. It was like a roller coaster ALL DAY.
I called his Dr. the next day and they gave me an appt. for the next day, for Thursday.
So we went in on Thursday and the Doc. gave him a complete physical and had blood work
done.
When they pricked his finger in the Dr.'s office to check his sugar levels it was a little high, so
they sent us to a lab to get his blood drawn to be tested for diabetes.
We won't hear back from the Dr. until Mon. or Tues because of the 4th being a holiday.

We are scared.

I tried to look online about childhood diabetes. But it is not easy and not so clear.

So I am asking this to you mama's because you will be better at giving me advice then some website.

Do you have a child with diabetes?

What should I look for?

What should I do for him until I find out from the Dr.

My husband works out of state so I am having to deal with this alone.
I have four children and I am stressed out and worried.

My husband said that I need to keep sugar away from him, ( that's too late now ) I thought that I needed to give
him something with sugar in it.

Today my son was hungry all day long. He wanted to eat and eat.

I don't know anything about diabetes.

What do I do?

I feel so bad for my son.

Thank you for your time and advice.

2 moms found this helpful

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R.J.

answers from Seattle on

I have a child with respiratory problems (who is also hypoglycemic)

Next time his lips go blue, put him in the car and drive to the ER. Blue lips (unless you're in a pool/ or the snow/ etc), means that a person's o2 levels are crashing/ they aren't getting enough air. He needs oxygen, a bronchiodilator, or both.

ER.

First step to life is breathing, that absolutely has to be addressed the moment it starts to happen. Because by the time they're cyanotic, they've been oxygen deprived for some time. Tests once they've pinked up again will not show oxygen starvation from yesterday, or even 5 minutes ago.

Blue = ER.

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R.H.

answers from Boston on

OMG. I appreciate you thinking that the moms of mamapedia would give you good advice, but after reading through the responses I have to say, you have some conflicting, and wrong advice here. I am a nurse, and my husband has had Diabetes since he was a child, so please let me give you some accurate information. First I'd like to say that you can always call the Dr.'s office and ask the nurse to answer your questions about diet. Don't rely on the internet or your husband, or any preconceived notions you have about diabetes.

1. Childhood Diabetes is almost always Type 1 Diabetes (it used to be called Juvenile Diabetes), so if you must look it up online, look up Type 1 Diabetes. In recent decades Type 2 Diabetes has become a problem with children. Try not to get too hung up on the different types. THe pediatrician will let you know which one it is (if in fact the child has it).

2. The 3 main symptoms are, without question, nearly every single time, the following: a. Increased Thirst (Polydipsia)
b. Increased Hunger (Polyphagia)
c. Increased Urination (Polyuria)

3. Testing for Diabetes includes checking the blood sugar levels on an empty stomach, again after drinking a solution with sugar in it, urine test, and checking a Hemoglobin A1C, which is a blood test that gives information about the average blood sugar levels over the past 3 months.

Diabetics have fluctuations in their blood sugar levels. People without Diabetes maintain blood sugar levels within a pretty tight range. Diabetics can fluctuate wildly; from extremely low blood sugar, called Hypoglycemia, and extremely high blood sugar, called hyperglycemia. Both Hyper- and Hypoglycemia are potentially serious, and must be treated.

Don't rely on your husband or the internet to tell you whether or not your son should be consuming sugar and carbs. It totally depends on his blood sugar readings, how well his body is producing Insulin, whether or not his body is utilizing his own insulin, and whether or not he is being treated with injected Insulin. The only person who can tell you what to feed your son right now is the doctor or nurse at the office.

Symptoms of Hyperglycemia (high blood sugar) include: Increased thirst, Increased hunger, Increased urination, eventually lethargy. Hyperglycemia is treated with Insulin, and occasionally other medications and IV fluids are needed if the blood sugar is dangerously high. If your child has these symptoms at home before the next doctor's visit, make sure he is getting plenty of water, and CALL THE DOCTOR.

Symptoms of Hypoglycemia (low blood sugar) include: Shakiness (trembling), Sweating, Confusion, Dizziness, Pale skin, Nausea, Tingling/numbness of the lips or fingertips, passing out. If your child has these symptoms at home between now and the next doctor's visit, give him a glass of juice and CALL THE DOCTOR.

I have never seen blue lips mentioned as a symptom of either hyperglycemia or hypoglycemia but perhaps if he's pale from being hypoglycemic his lips might appear to be purple or blue. Then again your child might have something else going on which is causing both the blue lips and the abnormal blood sugar readings.

Stay in steady contact with the doctors office. Report any new symptoms. It might help to keep a journal of the time of day when symptoms occur, what the symptoms are, and what did or did not help to resolve the symptoms, so you can share the information with the pediatrician.

PS you shouldn't necessarily alter your son's diet right now, before you have a diagnosis. Many Type 1 Diabetics actually can eat the whole range of carbs, including the occasional sugary snack, as long as they calculate the proper amount of insulin to take with the snack/meal, so don't get hung up on dietary changes just yet. Keep your son safe by reporting the above symptoms. In addition, take the respiratory therapists advice and bring him to the ER if his lips or fingertips are turning blue.

No matter what is going on with your son you guys will get through this!

9 moms found this helpful
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B.R.

answers from Milwaukee on

First of all, breathe. There is a lot more to it than sugar. It's all about carbohydrates. If you are concerned, take him to a walk-in clinic and have his blood glucose checked. If he wants to eat and eat, urinates a lot and has a high thirst level, then have him drink water and stay active. My son had Juvenile Diabetes--it's nothing to mess with, but it can be managed. Waiting until Tuesday is foolish--if you are concerned, take him to see a dr at a clinic or hospital for a finger poke. If he starts having flu symptoms, take him to the hospital immediately. Hope it is all just a false alarm. (((HUGS)))

3 moms found this helpful
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A.F.

answers from Fargo on

My 7 year old and my 4 year old have Type 1 diabetes. My husband has had it since he was 3 years old.
I have never heard of blue lips as a symptom of either Type 1 or Type 2 diabetes.
Like another poster said, don't alter his diet until you hear from the doctor.
I agree completely with Riley..... as soon as he presents with blue lips, head to the ER.

The thing that has me confused is that you are being made to wait until the holiday is over. Both of my kids were diagnosed within an hour following a blood and urine test. I am sorry that they are making you worry for so long!

Rachel H. gave you excellent advice. The information she gave you is right on, I hope it gives you some comfort!

3 moms found this helpful

K.L.

answers from Redding on

My daughter developed type 1 diabetes when she wa 12. Shes 28 now. I have never heard of blue lips being a symptom. What I know is, 3 main symptoms are, extreme thrist, losing weight without trying, and peeing all the time. Those are the dead give aways that diabetes has started. Other symptoms are moodiness, mouthiness, sullen, depressed, lethargic, and throwing up multiple times. Its not necessarily sugar that is the problem, but carbs, so potatoes, rice, pasta and breads are not great in large quanities. Sure you dont want to sit him down with candy too but the worst thing you can tell him is he cant have any candy ever again. it just isnt so, and it will just make him want it more. I am curious as to what number his blood sugar was exactly. If it was much over normal levels they wouldnt have made you wait at all after finding out. It can be deadly and they know it, so they wont make you wait till after a holiday. Normal blood sugar is between 90 and 120, altho some now say 80 to 100. Anything over 100 might make them retest to make sure. When my daughter was checked the first time it was well over 600. If his was high and they tell you he has type 1 diabetes make sure he understands that when he gets a shot, and the blood sugar comes down, he will still need more shots later. it will be for the rest of his life, not just the one time. They didnt explain it to my daughgter well that first day and when she tested her blood sugar later and it was normal she thought she was all better.Then they told her she still had to have a shot before every meal and at bedtime too. It broke our hearts to see her realizing what was changing in her life when she was under the impretion one shot had cured her. It just all happens so fast. So, if he does have it, you will find education classes, dietitians, and all sorts of info. "Diabetes Forecast" magazine is great, and you can read all sorts of things about it. It does tend to focus more on type 2 which is adult onset and different from type 1. Type 1 is where your pancreas stops making insulin and you have to do shots to stay alive. type 2 is when your pancreas doesnt make enough or your body doesnt use it efficiently enough to keep your blood sugar in normal ranges. it can be helped by losing weight and exercise and eating better. PM me if you want to talk. Its complicated but we have to get thru it,, Hugs, (o:

2 moms found this helpful

H.G.

answers from Dallas on

Im sorrry you are going through this. We had a scare with type 2 diabetes with my son as he was always right on the verge of it. Luckily he hit puberty and lost alot of weight and everything is normal now. I've never heard blue lips as a sign of diabetes. I would think that is heart or circulatory issue? I know the weight is hard but what I always remind myself Of what my mama used to always tell me, don't worry until there's a reason to! Also, why make yourself sick over something you can't do anything about! Best of luck my dear and keep us posted!

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S.H.

answers from Honolulu on

IF a person goes into Diabetic Shock, you need to give him sugar.
In order to bring blood-sugar levels back into normal range.

You really, need to page the Pediatrician.
Tell him/her this.
And what to do... in the meantime while you wait for the results.

He needs to eat, regularly... to prevent Hypoglycemia. ie: a drop in blood sugar levels.

Call a Doctor.

1 mom found this helpful
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J.K.

answers from Phoenix on

My brother has had it since he was 14. They admitted him in the hospital because his levels were out of control. It looks like you caught it soon enough which is good. He has to check his levels and control his sugar, carbs and protein manually. He has to eat certain amounts at certain times and take shots. The doctor says that he takes care of his diabetes better than most adults. It's different than type 2 where you have to stay away from sugar.. at least that's how it is with my brother. Good luck to you! I wish you the best!

1 mom found this helpful

T.C.

answers from Dallas on

Does childhood diabetes work the same as other diabetes, other than the cause of it? I know one is diet caused (in older people) and it's more genetic in younger kids and a failure with the pancreas, right?

It's not just sugar you need to keep him away from. You need to watch his carb intake to keep his blood sugar from spiking. You aren't wrong for giving him sugar at times. His blood sugar will likely drop low and he'll need sugar to bring it back up. Ideally you want to keep his blood sugar as even as you can.

I'm a little hesitant giving this info because it's based off of grown up diabetes and how to control it. So, just keep that in mind. This is info that would help adult onset diabetes.

You want to avoid (or be cautious with) potatoes, rice, breads, juice, sugar...basically anything with carbs in it, you want to be careful about giving him. It does what sugar does - spikes the blood sugar.

You can get a blood glucose monitor from a drug store (like Walgreens or CVS). I bought several FREE ones from CVS. So you might want to check out your week's coupons and see if you they have any for free with a coupon. then you can test his blood levels regularly to see how they are doing.

If he does have it, I promise you that once you get educated, you'll be okay. He'll be okay. My friend has a son with this. She is well educated and her son does fine. He eats whatever he wants, but he has to be on insulin to make his pancreas (?) work like it's supposed to. So, once they determine what is up with him (your son), if he has diabetes, he might need to get on insulin to make his pancreas work correctly. Then he'll be able to eat whatever and will just need to learn how to get the insulin amount correct per feeding. My friend always amazed me! :-)

(((hugs)))

1 mom found this helpful

V.C.

answers from Dallas on

I don't have a child with it, but lots of family members. There are two types, I and II. Young children usually have type I. That means he will have to take insulin. Hopefully, your doctor will refer you to a dietician or nutritionist to help you with his diet.
But yes, sugar will be a no-no. You will have to check all packaged foods for it. You will also have to be careful about protein.
Good luck and God bless.
Edit:
All carbs are not bad. Whole grains, fruits and vegetables are loaded with good carbs and contain fiber..diabetics need lots of fiber.

1 mom found this helpful
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L.M.

answers from New York on

I have never heard of anyone with diabetes having blue lips. I'm very surprised the doctor didn't address this issue. If your child has blue lips, call the doctor's office immediately.

Although diabetes is a serious condition, it can be controlled with medication, diet and exercise so don't be overly concerned.

What should you do? Call the doctor if he has blue lips or take him to a medical facility. Continue to feed him a healthy diet. A child's hunger can change dramatically during growth spurts, so dont' worry that he wants to eat and eat. Just offer him a variety of healthy choices.

B.K.

answers from Chicago on

Please call your doctor -- page him/her -- and ask questions about what to feed your son while you wait for results. As you can see from the posts below, some people say to stay away from sugar. Some say you need it for someone in shock. Some say to stay away from carbs (which is correct) and yet another says you have to be careful with protein. So..... page your doctor and ask these questions. You aren't going to get one simple answer here, and I think it's dangerous for people to give advice on such a serious thing when they aren't 100% sure about what they're saying. Call your doctor. And take this one day at a time. There are lots of diabetic kids and it's a manageable disease. You'll all be fine.

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