I Need Help.... - San Antonio,TX

Updated on March 29, 2008
V.B. asks from San Antonio, TX
7 answers

I need help, my son is a 3 yr old autistic child that has been seizure free for 2 yrs and recently his behavior has gotten worse. I am asking for any information on childcare,parenting classes, government,state,or anyone who can help teach me to deal with a special needs child.( Anything helpful at this piont)

Ryan attends PPCD which is a form of special education for speech and social peer modeling. ( He also had a year of Easter Seals twice a week every week for a year)
He goes to school, 15 hours a week give or take for bus ride. Ryan has been to a developmental peddie doc which confirmed the autism and being on the spectrum. She recommended 30 hours...however one parent staying home, even though Dad has a great job is not going to cover 15 hours private O.T., as doc recommended. ( on top of all the other bills and an elder brother who is currently being tested for Aphers')

His latest behavior, beside constantly crying because we have not worked out a good method of communication...other than some jesturing ie pionting, putting things up his nose....tonight I heard a scream, came running around the corner....there was a pen on the floor. I thought well maybe he just broke it and other than ink mess...but he was poking at his nose....my husband helped me with carefully removing the end of a pen out ( thank God for tweezers and a little luck).

He also has started chewing food and using his left hand ( he seems to favor his left like dad) through out his food. Ryan has been,sick so maybe that's his way of saying he is not intrested in eating but, this has gone on much of spring break.

I started placing a car in his left hand, this seems to work ok, with the occasional reinforcment of," we do not play with food" and if that does not work third time, it is removed for five minutes before begining again.

Ryan is a beautiful happy boy except he is still very hyper and we are having behavirol issues that, relatives and friends are not equipt to help with. Often I feel when,I do its like they say poor V. and that's not it at all. I just want a way to HELP my family and child....

( its also important to note...our insurance does not cover sleep studies, O.T, theropy ect.....yet we do not qualify for medicaide...food stamp ect....)

Thank you for reading and best reguards
V.

1 mom found this helpful

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C.S.

answers from San Antonio on

V., you may try CSHCN program: http://www.dshs.state.tx.us/cshcn/
I have a special needs kid at home and we have medicaid. I asked our social worker and she said that families that do not qualify for medicaid can still apply for this program, they help providing all kind of services, PT OT medical equipment, all he needs. There is a long long waiting list so you may want to apply now and every six months they choose families on the list for some benefits.
I would start by switchin insurance if possible, your kid can not be with out OT or PT. He MUST have all the servicies he needs and we as parents are the best advocates. dont take a no for an answer. the people of esater seals can help you to find another place to take the services he had there too. talk to a couselor on estar seals.
I'm guessing you make too much money to qualify for medicaid (what about chip?) but not enough to pay for his therapies...
have you ever appplied for suplemental income for him??
I wish you the best luck and i hope he (and you) feel much better soon
(((HUGS)))
C.

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N.M.

answers from Austin on

My husband works for a MHMR center here in Williamson county called Bluebonnet Trails. However, they have centers all over central Texas. Which facility that would be able to assist you would depend on what county you are in. He (my husband) did say that they will help even if insurance doesn't cover it or if you are not on medicaid. I'm not sure how the structure works, but they are non-profit. If you wouldn't mind saying what county you are in I will find out which facility services your area and post back.

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D.R.

answers from Austin on

Dear V.,
There are services available for your kids. In Austin, there is a program for kids with speech and language issues called The Capitol School. It is for pre-school aged kids through third grade. They have scholarships available. All the classes are taught by teachers with master's degrees in Speech Pathology and the ratios are quite small. It is wonderful. I am the play therapist there. They also provide OT. I'm hoping you are in Austin, but if not-maybe you can call The Capitol School ###-###-####. tell them where you live and maybe they know of services in your area.
You sound like a great mom. Lots of luck to you and your sweet sons.
D.

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J.V.

answers from Austin on

Hi V.!

Hang in there! My 9 year old is autistic and it has been a long road. It gets easier, I swear it does.

You got a lot of good advice here. I only want to add this: enjoy your sons. Do not think of their life as a therapy session all of the time. You will go crazy. Every now and then, get down and enjoy doing things with them on their level, be silly and have fun.

Do not let the fact that you might not be able to do the recommended number of hours of therapy make you feel guilty or feel like less of a mother. I do not know of anyone who could ever keep up the schedule that the professionals recommend. I am not saying that you should ignore the recommendations, just do not take their ideals as something you can meet all of the time.

Do you use picture symbols with your boys? It really helped with my kiddo as the struggle with communication would get him so frustrated that he would (and still does) disappear into his own world. Another life saver (with him and my NT son) are visual schedules and social stories.

Let me know if you are in Williamson County-- we have a playgroup in Georgetown and would love to meet you--

J

ps I would also love to hear how you make out with BlueBonnet. We got nowhere with them. A great idea but the resources seem to be nil.

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L.S.

answers from College Station on

I work currently work as a music therapist and piano teacher out of my home. I was wondering if you had tried using sign language to help facilitate communication. I have used it with some success with the children who have autism with whom I work. Music is also a wonderful tool that can help facilitate communication between you and your son. I would be glad to talk with you more about it if you are interested.

L.

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E.S.

answers from Houston on

What county do you live in? As others have said, depending on where you live depends who you can get services from. This is due to how the grants are written.

I have taught PPCD and I am currently an Autism teacher in a public elementary school.

I feel for my parents, because having a child with Autim effects your relationships with family members and friends. I know because I have a son also. I stopped visiting my sisters all white decored/breakable house when he was that age because it was so stressful.

Be consistent!
Some people may even think your mean, but I can tell you first hand that the battles you take on NOW will make all the difference in the future.

I will never forget when I was talking with a grandparent of a child with 11 years old with Autism in my class and her son stood on the table in my room. (Had never done it before). When I told him to get down. She said "Oh, It's because he's an only child". I explained that he understood the rules in my class. Even though he did not verbalize.

My parents are often amazed when they come to my classroom as they sit and eat and act so appropriately. The parents tell me they can't get them to do it at home. I explain to them that I shape the behavior by returning them without saying a word, to their chair. It may take 20 times during the first meal. Then 10, then maybe only once and eventually not at all.

Your doing the right thing with the food. Remove it when he does not act appropritaely. As for the nose thing.... thats why they need almost constant supervision. I recommend to my parents create one room where they spend the majority of their time and you and your husbend and any help you can recruit take 1 hour chunks keeping them on schedule and engaged in meaningful activities, and when something like that happens... try and not make too big a deal.

You need to find a "Behavior Therapist" and look for someone to perform a Funtional Behavior Analysis" to try and determine the functions of your sons behaviors.

Also what many of my parents with young child are not told is as they grow up the behaviors change and are replaced with new behaviors. This is why we need to find you a good program to provide you with plenty of support.

Here for you.

E.S.

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K.H.

answers from Houston on

Please don't give up. It seems like a long road to having a calm, structured family but it will get better. Email me and we can chat more. I have some helpful advice.

K. Haynes
The MOM Team
Moms helping moms work from home
www.mykidsaremyeverything.com

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