You have to appear "vulnerable" like the rest of the world does. It seem when we appear strong and confident, everyone assumes we are fine and can handle it. If you are sick, lay down and let them know you are unable to do whatever it is they want done - but if you're like me, lay down then get back up and feel like they NEED you, then you are going to get back in the same mode of being superwoman.
Take your health and well being into your own hands, because nobody knows how you feel and are inside but you and God. I went to a dr once and I told him my complaint, he said I don't have this or that, and that he is the doctor here. I tell him, yes I understand that, but I know my body and I'm the one living with it every day, not you. No offense to any doctors here, but if the symptoms do not match those in a book or that they are accustomed to seeing, they assume you are fine. Keep pursuing after your health until someone listens that you are hurting. I am in a similar situation trying to convince my dentist of an issue that nobody can seem to figure out.
You have to ASK for the help you need and don't feel guilty about doing it. My husband taught me that not everyone can read minds so how will they know unless you tell them.
I can relate to you. All the best!