Help! Can Anyone Recommend a Great Endocrinologist?

Updated on March 09, 2012
J.S. asks from Sugar Grove, IL
6 answers

Hi moms,
To make a long story short, I believe I have a problem with my thyroid, probably hypothyroidism. My levels have been checked 3 times in 2 years, ordered by another doctor, and it always comes back "normal". Well, I got a copy of my recent TSH test and from doing research I think my doc is going by the old "normal range" results. She is a OB/GYN and although I think she is very good, she seems to want to push off my symptoms on other things and not look further in to this. All I can say is I have these symptoms that make me feel lousy and I'm taking it into my own hands to figure it out. I'm looking for an endocrinologist that follows the new normal range for TSH and also will do other tests for the thyroid and other hormone levels. I live in Sugar Grove, IL (a western suburb of Chicago) but would travel farther for a great doctor. Thanks so much!

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L.K.

answers from Kansas City on

Been there done that. I find it truly incredible that docs don't get that hormones fluctuate and what is 'within normal limits' now can be out of whack a week later. *BTW, I am an RN and have had to fight, figuratively, to get a doc to listen to me. So I'm not trashing the healthcare workers I work with.

Sorry, I can't help you with a doc recommendation, but DEMAND the draw a Reverse T3, DHEA and Cortisol level. I finally found a doc to listen to me who even admitted that most docs don't know about, or think of the Reverse T3. It is an indicator that your thyroid may be out of whack when all the other thyroid tests are 'normal'. Also, by drawing the DHEA and cortisol level, I found out I am in adrenal stress, not quite adrenal fatigue, but partially because my thyroid issues have gone unchecked for so many years.
Don't be surprised either when a doc dismisses the thought of adrenal stress or fatigue. Unless you fall into the Addison's Disease box they aren't quite sure what to do with you.
After 10 years of off and on addressing my symptoms, I finally feel like I'm being heard and on the right track.
YOU are your best healthcare advocate.

2 moms found this helpful
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T.K.

answers from Chicago on

Good recommendation for an endocrinologist:

Academic Endocrinology

Wheaton Office
2001 Gary Avenue
Suite 240
Wheaton, IL 60187

Naperville Office
2007 95th Street
Suite 101
Naperville, IL 60564

Phone Numbers
Office : ###-###-####
Fax : ###-###-####
Emergency Pager: ###-###-####

I see Dr. Skjei

Good Luck!

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S.R.

answers from Kansas City on

Sometimes it is about finding the right doctor. I had trouble, but I went to a DO instead of an MD and she said, "I'm going to treat the patient, not the test results." My numbers come back within "normal" but they are not normal for me. It's like your temperature: my "normal" body temp through college was 97.2, not 98.6. If I had a 99 degree temp, I felt pretty awful because that was much higher than my normal. In my experience, OB/GYNs aren't as well-versed in this. I have a separate OB/GYN and she is clueless about the thryoid issues.

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C.C.

answers from Denver on

Hi J. - I'm sorry I cant refer someone in your area but I encourage you to pursue this with a specialist because thyroid probs are tricky and vary from person to person. You might also ask for a copy of your test results so you can see the numbers. Different labs have different ranges.

I was having all kinds of thyroid symptoms but my TSH always came back normal or low-normal between .8 and 1.8

Endocrinologist was willing to give me thryoid hormone for symptoms at 1.3 to see if I felt better. There are also other conditions that endocrinologist will look for such as nodules, auto-immune problems like Hashimoto's etc. that your regular GP wont look for.

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C.O.

answers from Washington DC on

believe it or not - Angie's List has doctors. Try there.

Then I would call my insurance company and see who they support and what their ratings are.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

J.K.

answers from Chicago on

I don't have a doctor to recommend, sorry! But, as a suggestion, I would recommend that you also have your Vitamin D levels checked when you have the next round of blood work done. A lot of the symptoms from thyroid problems are similar to those of low vitamin D. I had very low vit D and when I started to take the (megadose) supplements prescribed by my doctor I was stunned at how different I felt. Good luck!

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