" Don't sweat until the PC tells you to."
This quote from Dana was RIGHT ON!! Same with everyone else's responses. I was born with this damned defect, so was my younger daughter, and now, both of my precious littl grandsons have it. It IS hereditary (like webbed toes etc..)BUT, its not anyone's fault. My daughter and my grandsons never had to have any surgery, but we have to keep an eye on it--just to be on the side of caution. I always told my daughter to be aware--if she felt "certain ways"--because I went through the "attacks" when my heart went "crazy" (our word for it). My symptoms went ACTIVE (tachycardia, dizziness, fainting) when I went through puberty. My poor girls had to watch me go into the ambulance so many times, and watch the flatline go beep--but they KNOW how to make things work, and they do it QUCKLY!!!!Luckily, my daughter did not have any active symptoms, and so far (knock on wood) grandsons don't have any active symptoms either. The big thing is not to "LABEL" your sweet daughter as a "defect".
She will catch on to it...
(MY own parents did that to me, and it was devastating :( SO, I DID NOT do that to my own kiddo)
I am the only one that had to have surgery, and got fitted for a pacemaker at age 30. Luckily, the surgery went well (a catheter thru the femoral artery, and they lazered the defective parts)and no pacer was needed. At age 31, I was actively working in radiology, and in the Cath Lab, where they do these surgeries. The way that medicine has advanced with this sort of thing is AWESOME!! The Ped. Cardio. will know what to do, and you can trust their judgement. They will keep x ray exposure to a minimum, and if she needs the surgery, it will be easy and very effective. The operative word here is IF. HOPEFULLY, she won't, and her life will be one of a happy, healthy, running little girl. Just don't sweat anything UNTIL the PC tells you to!! Big love to you and your precious angel!
Becca