Hashimoto's Disease?

Updated on November 11, 2012
B.R. asks from Madison, WI
7 answers

Hi there...does anyone on here have Hashimoto's Disease...for a long time now I have been trying to figure out what is wrong with me...most recently my sister has been diagnosed with this disease...I look at my history and my issues and (not to self diagnose) but whoa I think this might be my issue.

I have been tested many times in the last 6 year for hypho thyroid...which 7 years ago I was diagnosed with and was on Levothyroxin for...but then we moved and my new doctor said I didn't have it...anyhow. Between my Goiter (which I have had since I was 14 and my many other issues I could swear this might be the answer...

Do you have this? Was it a quick easy diagnosis? Are their tests that I should request doctors to run? Am I overreacting and being silly?

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R.M.

answers from San Francisco on

I have it. And Hashimoto's and hypothyroid are not synonymous. Hashimoto's is just one cause of hypothyroidism, so you can be hypothyroid without having Hashimoto's.

No, you're not "overreacting" -- it's a simple blood test to diagnose this, and there is no reason for your doctor not to do it.

If you were hypothyroid many years ago, I don't understand why all of a sudden you would be "cured." I will be taking my pills for life, most likely.

Maybe your new doctor thought you didn't have it because you had been taking pills so your thyroid level was still normal when you were tested? Or did he/she test you before declaring you "normal?"

Just get another blood test. Yes, it's quick and easy. The doctor should know the relevant tests. TSH, thyroid antibodies (for Hashimoto's), and T-4 or T-3, I think they usually are. Something like that.

2 moms found this helpful

C.C.

answers from San Francisco on

Check out www.stopthethyroidmadness.com. Lots of great info on there. The most important take-away is that if you have multiple symptoms of hypothyroid disease, then you have it. Most doctors only test for TSH, which is an indicator that something might be wrong, but plenty of people have thyroid dysfunction with "normal" TSH tests. Read the above website for more info. I had ALL kinds of problems and my TSH was a supposedly "normal" 5.5 - turns out that not only does my body need to be more like 1.2 TSH, but also my body doesn't process T4 very well, and I need T3/T2/T1 also. So even if you get a diagnosis, you have to be sure they have you on the right medication. Levothyroxine only covers a portion of my symptoms; dessicated thyroid is what I actually need to resolve the whole issue. It's sort of a complicated problem to have; educate yourself the best you can before you go see a doctor about it. Good luck.

2 moms found this helpful
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D.G.

answers from Dallas on

Don't know about Hashimoto's Disease. I have a hypo thyroid but have never been told I have Hashimoto's. I had a goiter and the doctor that diagnosed me (an internist) said that is a major sign of hypo thyroid. I would have your doctor recheck you with all the levels, etc as suggested below.

1 mom found this helpful

W.P.

answers from New York on

I was recently diagnosed with Hashimoto's Disease. I have rheumatoid arthritis, and I have 2 aunts & 2 cousins who have Hashimoto's Disease; so I was not at all surprised at my diagnosis. I was feeling extremely fatigued (more than usual), and I was gaining weight very easily (without consuming any extra calories). Once I was referred to an endocrinologist, the diagnosis was easy (just a blood test & some questions). An endocrinologist should know which blood tests to do/order in order to make a diagnosis. I wouldn't jump to any conclusions, though....Leave the diagnosis to a professional.

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L.M.

answers from Cleveland on

my aunt thought she might have it and that it might be genetic. I don't know how far she got into it. I can ask in a few weeks when isee her.

sometimes we have to be our own advocate.

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A.B.

answers from Dallas on

I have hypothyroid; I don't know if I have Hashimoto's. In addition to the blood tests for thyroid, I think for hashimoto's that they may want a fine needle aspiratoin biopsy of the thyroid or an ulltrasound of it. I also have a lot of thyroid disease in my family including thyroid cancer and Hashimoto's. Have you seen an endocronologist vs. primary care dr? That might be the place to start.

C.M.

answers from Washington DC on

I have it. You can be hypothyroid with out having hashimoto's. I first found out that I was hypothyroid after having my son. I was also on levothyroxin for about 2 years. I felt horrible on it, even though my dr. said I was normal. We moved and I went to see a homeopathic dr. She switched me to nature throid. 1000 times better! I've been on it for almost 2 years now. The way I found out I have hashimoto's is after about a year of my dr. checking my antibodies my levels were going up. It finally was high enough to where my dr. said there is some autoimmune issues going on. After checking to it a little more and more blood tests, she said it's 100% sure that I also have hashimoto's. The thing with one autoimmune, is that you are more likely to get more autoimmune diseases. One that links to it is celiac disease. My dr. wanted me to do a gluten free diet to help avoid getting any worse problems, but I just don't have the will power to do it, lol!
So for now, I just keep taking my meds for my hypothyroid and deal with having hashimoto's. Hope you feel better soon

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