K.N.
Oh my goodness! How frightening! I'm so sorry to hear of your daughter's condition.
I would get a second opinion. In fact I would seek one immediately.. fax records, make phone calls.. I would not wait idle over the weekend. Not because you discount the first doctor but just to be responsible and thorough. Your current doctor should not take offense to you wanting one.
This website (http://groups.msn.com/pseudotumorcerebri/yourwebpage11.msnw) lists some TX doctors that apparently specialize in the condition (I did not see any in that list in Austin).Although I know nothing about any of them, I myself would probably lean towards the pediatric specialists in Houston (Dr. Ian Butler and Dr. Koening) because they are pediatric and Houston is closer... or you can contact the email for the website and see if he has any insight for who you should get a 2nd opinion from (?):
Texas
*Dr. John G. McHenry, Associate Professor Department of Opthalmology, Neuro-Opthalmology, Oculoplastic and Orbital Surgery. Aston Ambulatory Care Center, 5303 Harry Hines Blvd, Dallas, TX 75390-9057. ###-###-####
*Dr. Anthony Riela, Neurologist, Plano Texas and Medical City Hospital, Dallas, Texas. ###-###-####
*Dr. Babu Welch, Neurosurgeon/Neuroradiologist, UT Southwestern Medical Center at Dallas, 5323 Harry Hines Blvd, Dallas, Texas 75390. ###-###-####. Affiliated Hospitals: Children's Medical Center of Dallas, Parkland Health and Hospital System, University Hospitals-Zale Lipshy Building.
*Dr. David Sacco, Neuro-Surgery, (This is the group that worked on sperating the Egyptian twins!). ###-###-####
*Dr. Kurt Bangerter, Neuro-Surgery, Dension, TX. ###-###-####
*Dr. Ian Butler and Dr. Koening, Neurology (Pediatric), University of Texas Pediatric Neurology - Univ of Texas Professional Building, 6410 Fannin Suite 1010, Houston, TX 77030, ###-###-####
*Dr. Judianne Kellaway, Neuro-Ophthalmologist, Hermann Eye Center/ Hermann Hospital, 6411 Fannin, 7th floor, Houston, TX 77030, ###-###-####
*Dr. Rudolph Churner, Opthamology, McKinney, TX. ###-###-####
*Dr. Paul Flavill, Neurology, McKinney, TX. ###-###-####
*Dr. Philip Blum, Houston Neurological Institute, 4141 Vista Rd., Pasadena, TX 77504, ###-###-####
*Dr. Marc Spurlock, Family/GP, Richardson, TX. ###-###-####
*Dr. John Carter, Neurology/Opthamology, UT Health Science
Center, University Eye Consultants, San Antonio, TX. 1-800-778-3627
*Dr. Richard Evans, Opthamology, San Antonio, Texas
*Dr. Lee M. Buono, Neurosurgical Associates of Texarkana, P.O Box 2750-1002 Texas BLVD, Suite 406, Texarkana, Texas 75504-2750. Phone ###-###-####