For Years I Have Had Pain and Swelling at My Tailbone Area for Years the Pain

Updated on March 22, 2016
P.B. asks from Chipley, FL
13 answers

X-rays & MRI'S reveal nothing that would Warrenton such pain doctors say. However I feel they are not looking at the level were the pain is. My tailbone swells and hurts so bad I can't get relief in any position. I'm broke from trying to explain to doctors it's not my lumbar spindle that give me so much trouble. I get oval shaped swelling just above my butt cheeks and it's many times fevered. What could this be and how can I get my doctor to listen to me

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S.H.

answers from Santa Barbara on

It could be a cyst. I watched a show about unusual ER stories and the person had a cyst from ingrown hair. Worth having it investigated since you are in so much pain. Tailbone area pain is awful.

http://www.medicinenet.com/pilonidal_cyst/article.htm

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E.B.

answers from Honolulu on

First, evaluate your daily life. Are you overweight or underweight to a significant degree? Do you sit at a desk most of the day? Do you sit with good posture, in a good chair? Do you exercise (either moderately, not much at all, or excessively)? Do you work at a job where you're on your feet all day, or do you work at home (taking care of children, doing lots of household tasks like laundry)? Have you had any injuries, even if they weren't directly in the area you're describing, like were you in a car accident, or did you fall? How is your posture? Do you have other pains, such as in an ankle or knee, that might be making you stand at an odd angle? My friend's husband was getting bad pains in his neck, but lots of tests showed nothing wrong with his neck. Then a physical therapist noticed that he was walking weirdly, because his knee was damaged, and he was walking in such a way so his knee wouldn't hurt, to avoid putting more pressure on it. Well, the way he was walking was throwing his whole posture off and his neck was hurting. The therapist helped him learn and remember to stand/walk correctly and to be mindful of his posture, and the neck pains went away. Still has his bum knee, but they're dealing with that.

Second, start a journal. Note when the pain/swelling happens, and what you did that day. How long does the pain/swelling last? When you say fevered, do you mean red and warm?

Third, take a photo when that oval shaped swelling occurs. Either have a family member or close friend take the photo, or figure out how to stand in front of a full length mirror. Get close up photos.

Then, show the photos to the doctor, along with the journal. Ask for a referral to a physical therapist, and bring your records. Or schedule an exam with a pain specialist. My daughter's heels hurt, but many tests have shown there's nothing structurally wrong. However, she was diagnosed with fibromyalgia, and a connective tissue disease that explain why her heels hurt.

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N.B.

answers from Oklahoma City on

Go to an orthopedic doc. They do bones.

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R..

answers from San Antonio on

I am getting a gut feeling of a cyst/boil/carbuncle.

My dad had neck pain off and on for years...docs never found anything wrong....finally literally years later he got a carbuncle (group of four huge boil)s that broke out on the base of his neck where all the pain had been off and on for years. He had to have it drained and packed....and I got to drive to his house everyday to unpack and re-pack it...as I was the only one who didn't throw up looking at it.

Then no more pain once it healed...he was on some pretty strong antibiotics for a while....it wasn't MRSA just regular staph...ewwww....

Maybe you have something "brewing" in there that hasn't reached the surface yet.

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F.W.

answers from Danville on

On the off chance that this is a 'real' post, I will share that as a child, I dislocated my tailbone (coccyx).

There was no magic cure at that time. I took a blow up donut to school, and sat on that. For a long L O N G time.

Beyond that, I am not sure what to say.

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C.T.

answers from Santa Fe on

Try different types of doctors. What type of doctor have you seen already? I would first try an orthopedic doctor. I would also talk to a chiropractor to see what he/she has to say...not necessarily do an adjustment. If anyone mentions nerve problems then try a neurologist. For my back problems the physical therapists have been the most helpful of all. I also went to a physiatrist which is a doctor who specializes in pain...I did learn some things there too and I think the treatments they did helped also. But the physical therapist was the best.

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D..

answers from Miami on

Take a copy of all these answers to your doctors. Tell them that you are searching for an answer. Ask the docs to look at what the ladies are saying here. I hope someone will actually TRY to figure this out. It sounds like you need a good diagnostician. (Dr. House without the drug habit...hope he has a better bedside manner, too...)

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J.C.

answers from New York on

Lots of good answers below. If you exhaust all of those answers, you might want to go and see a rheumatologist. Feel better.

D.B.

answers from Boston on

Can you edit your post and let us know what types of doctors you have already seen? And what does a "lumbar spindle" mean, and what does "it's many times fevered" mean? I don't know if these are terms I'm unfamiliar with or if autocorrect took over for you.

If you have been to several different doctors in different types of practices (internal medicine? orthopedics? neurology?), with no relief, and if they have seen this oval shaped swelling and say it's not there, you need a new team. You can try a really good chiropractor, an osteopath or massage therapist, or you can visit a large teaching hospital to get a multidisciplinary team to help. You can also look into a pain clinic to help you manage better.

There's just not enough information here in your original post to give you any better advice.

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J.C.

answers from Anchorage on

Do you go in when you actually have the swelling? If not then how can they see what is going on?

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J.D.

answers from Dayton on

Have you tried a chiropractor or medical massage therapist? Might be something to check out since you aren't getting any help from your physician.

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J.K.

answers from Wausau on

That sounds like a skin issue, possibly a cyst, which can come and go, be mild or painful, etc. If you haven't seen a dermatologist, I think that is the type of specialist you need. If you can manage to get in while having a flare up, that would be great, but I know there can be a wait to be seen depending on your area.

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