J.,
I'm so sorry your family is having to go through this. My hubby is a nurse and not a doc, but he said it sounds a lot like hydrops fetalis? But doesn't show all signs of it. However, way more testing/specialists looking will need to be done to really know for sure. If it were just the bilateral clefts, it would be correctable. But hubby says more concerning is the fluid in the neck and distended abdomen (ascites). Again, it could be so many different things...but you are very right to be concerned. We'll be thinking about you guys. Please let us know what she is told from the specialists!!!!!