Endometriosis - Miami,FL

I took Danocrine for several months to give my pelvis area a rest. It is a male hormone so it made my body no cycle. The cells died off and I haven't had many issues since. I do know if untreated it causes a person to not be ale to carry a child due to scar tissue not being stretchy, it only goes so far then starts tearing open. Big mess, miscarriage, etc...much better to treat it and get it done.

Hmmm. I'm not sure what to tell you. I guess all you can do is try to make yourself as comfortable as possible and know that you will have this condition as long as you have periods.
I suffered with endometriosis basically my whole life. I didn't start my period until I was 15 and then nothing for months. I was never regular a day in my life. My mother, who had never so much as had a cramp, was not very understanding when I was doubled over in agony. She thought I was being dramatic. After all, my little sister started her period years before I did and had no problems whatsoever.
I ended up having exploratory surgery and was about 17 when I was told I would probably never have any children. By 19, I only had part of one ovary and a spindly little fallopian tube and they were on opposite sides. My uterus was covered with endo. More surgeries followed. I was so sick at 22, that I was scheduled for a complete hysterectomy, but I became severely depressed. A friend told me about her OB/Gyn. He put me on birth control pills and shut my cycles down for a year. I did fairly well. I even got pregnant and had a healthy baby girl. She wasn't even a year old, and I was back in the hospital. More surgeries. Nine more years I suffered. I wouldn't take the pill because I wanted another baby so badly. I couldn't even function and just made the decision to have a hysterectomy. Strangely enough, not long after scheduling it, I went to the doctor because I couldn't figure out what was wrong with me and I was pregnant. After I had my baby, the endometriosis came back with a vengeance and within a year, I was back in the hospital. I was in so much pain, I couldn't even ride in the car or pick up my baby. My doctor showed me what my insides looked like and said, "Honey...it's time."
My hysterectomy changed my life.
I am so thankful and blessed to have my two children, but the truth is, if I had known how much better I would feel, I would have done it years before.
I have a friend who doesn't have endometriosis, but she has severe cramps and heavy bleeding, her periods interfere with her ability to have an active life, but she refuses to have a hysterectomy. Her youngest kid is 15, her husband has been fixed for 15 years...they don't want more kids. She's not afraid of surgeries. She's had them on her shoulder and her ankle. But still she suffers and misses work. She even lost a job because of it. I don't understand that.
I don't understand because I have come through to the other side after getting to a point where I could not take it anymore.

I'm sorry this got long and I'm not talking AT you, I'm just sharing my experience.
Endometriosis can be excruciating.
I had a severe case and tried everything and it kept coming back worse than before so I hope someone knows of something you can do that isn't on your NOT to do list.
You are the only person who knows your own body and how much you can take. And how long you are willing to take it.
I feel for you. I do.
I don't have any magic answers or suggestions. It sounds like you've been through all the options with your doctor.
One thing that did help me sometimes though, was forcing myself to get up and move around. Even when I couldn't bear to be in a car or hit any bumps, walking around the house did help to relieve some of the cramping. Not always, but sometimes it was like "If I can just keep moving, I won't end up crying in the fetal position in bed".
It's worth a try.

Okay, so you want your health to change, but pretty much any option available that can help like dietary changes, is something you are unwilling or physically unable to do? I would suggest talking to your Dr. who may have some alternative solutions. Acupuncture, heating pads and warm baths and pelvic laparoscopy can help. Also, Best of luck!

Some good advice here:
http://www.mayoclinic.com/health/endometriosis/DS00289
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001913/

You are what you eat. You are probably very yeasty. Get a book called The Yeast Connection. It will change your life.

I was diagnosed with this at 36y. They did a pelvic ultrasound and discovered I had a VERY thick wall build up. The GP said she had never seen a case so bad. The first 3 days of a cycle I would go through a Always Super pad AND a Tampax Overnight every 20 mins. The dr. said she was surprised I was sitting in her office functioning and not dead from bleeding to death...

Anyway, a D&C and a proceedure called NovaSure saved my life!!
http://www.novasure.com/index.cfm

It was featured on 'The Doctor's'
http://www.youtube.com/watch?v=khg2I_ecHlM

For the first few months the cramping is REALLY bad but it gets better. I still have cycles, but now I don't use tampons and maybe need to go to the bathroom every 2 hours. My life is so much better now.

Hello, I have a friend who is about your age, and she just found out she has this too, a few years ago. She has tried everything under the sun, to control her pain. Her doctor said the next step is a hysterectomy. She is unwilling so far, and is trying to work a "pain plan" out with her doctor. She is taking some kind of shot, that I believe she can get every 6 months. I do not know the name of it, but maybe you are aware since you have been going through this. I feel for you, because it is always with you, the pain. I hope you find something to make you feel better.

It seems like you want to comfort yourself with chemicals, which means you are not taking responsibility for healing yourself - the very fact that you are so attached to cigarettes and processed carbs suggests you have major emotional issues that you haven't really addressed in a healthy way - so your body is expressing/reflecting the psychological issues and your lifestyle just compounds the problem. If you look for short term ways of covering up the systems and ignore the opportunity to pursue real healing then your problems and distress are likely to get worse. My suggestion is to work at a deep psychological, spiritual, and energetic level to release the patterns that are creating the condition - things like hypnosis, reiki/chakra clearing, yoga, meditation, spiritual consultations, etc., could assist you. Ultimately, there are things about your life experience that you will need to release and make peace with - when that type of inner spiritual/psychological shift occurs people often lose interest in smoking, junk food, etc., and feel inspired to change their lifestyle.

Mirena IUD, but the white sugar is a HUGE part of the problem of your PMS.

If it IS endometriosis then you can ask your doc about getting the laser surgery and it basically cleans out the endometrial tissue from your body, I know the hell you're going through, I got mine at 15 and literally did pass out from the pain :( luckily I was able to be on birth control for a while.. they basically told me that if I didn't do BC then I'd have to have the procedure to clean things up.. good luck, I know it sucks!

I'm right with you on everything except substitute drinking diet soda all day for the cigs. Anyway, my periods were AWFUL after having my son - unbelievably awful. But, here I am, 47, and they seem to be lots better for some reason this past year. It only last a few days, not nearly as painful. I guess that is the one benefit of getting older. I sympathize with you for sure! I think in time they will get better (you know, menopause here we come!)