Ear Tubes Keep Falling Out After MANY Surgeries

Updated on October 24, 2014
B.L. asks from Spring Valley, NY
8 answers

I have a 15 yr old daughter who is having her 14th set of ear tubes.No, she has not grown out of this yet. Everytime the tubes fall out on their own, it is a matter of months till the fluid returns and is trapped behind the closed ear canal. I have peole telling me that is the doctors fault. She ends up with 80% hearing loss when the tubes are out and the fluid is trapped. What can I do?? After the tubes are placed in ...AGAIN...her hearing is perfect! Her first surgury was at 13 months. Her adnoids were removed with her 5th surgury. She has ashma and seasonal allergies along with OCD. She gets broncitus more often now too..She is a carrier for strep I'm told but does not get many strep throats.I was thinking of taking out the tonsils this time too. Maybe thats related to the infections? My doctor thinks not. I did go to another ENT and get a second opions years ago concerning her condition and he kind of said the same thing my ENT has told me over and over again. Am I the only person who has a child in this rare situation?? When is she going to out grow this?? Please help if you have any insight as to what I should do by now....BTW...the past 5 or 6 sets of tubes were T tubes (tympanostomy tube) , They are suppose to stay in place for up to 3 years and then be surgically removed. But I am the rare 1% that just keep falling out???
B.

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G.B.

answers from Boise on

It is an allergic reaction.

The body will increase and thicken phlem when it is ingesting something it is allergic to. Then, the thick phlem and secretions stick in the sinus and ear cavities, and that is the perfect grounds for fungus to grow.

Milk products, sugar, grains, (and processed food) GMO's... can all cause it.

Do an elimination diet. When I stopped eating sugar, soda, and fast foods my boogers totally disappeared. Boogers are a response to an inflammatory condition. ANY boogers, and thick phlem are NOT normal.

Eating LOTS of *organic* fruit and raw salads, real organic oatmeal (not boxed) apples, carrot juices, etc...helped my daughter tremendously.

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D.D.

answers from Pittsburgh on

Have you checked with an academic medical center for a second opinion?

At my center, there is a clinical trial that is ongoing that will take people with this problem and instead of doing multiple ear tubes, they are taking a balloon in through the tube and using it to stretch their natural eustachian tubes to try to prevent the problem from recurring.

This is not for infants and toddlers who might outgrow their ear issues. I don't know if this is widely done at this time, I just saw a flyer about it at my ENT's office.

4 moms found this helpful
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G.B.

answers from Oklahoma City on

I'm wondering if you can go the next step up with the doc? If your doc is a regular ORL/ENT doc perhaps you can go to a Children's Hospital and move up the ladder to a person who's a professor? Researcher? Someone that might have brand new technology for this.

1 mom found this helpful

D.B.

answers from Boston on

If you want to continue to go the medical route, I'd go to a children's hospital. This is absurd that a child needs this many surgeries that don't work, and it seems crazy to look at taking the tonsils (which is no picnic at 15) just in the hopes that it will work.

Have you looked at all into nutritional solutions? There is a whole body of research and some totally safe alternatives that improve immunity and reduce inflammation. I work with tons of people who who kids like this - ear tube surgeries, asthma, allergies, etc. I myself was like this - I was supposed to have my tonsils out as a child (when they did it more routinely) but I had to be well for 3 weeks before surgery. I wasn't. Finally they gave up and I still have my tonsils, but for years I had inflammation and frequent bouts of tonsillitis. I also was one of those adults whose every cold turned into bronchitis (usually 4 cases per year, for a month at a time of course) so my life was really impacted. But I've had no infections for 7 years, not even a cold, and am off all my medications. My doctor is thrilled. There is so much you can do to strengthen her immune system. It's not an overnight thing but it doesn't conflict with any medical options or medications and is totally safe. Even if your daughter did need another operation, her recovery would probably be simpler.

1 mom found this helpful
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L.P.

answers from Boca Raton on

please don't keep doing the same thing hoping for a different outcome.
find an middle ear specialist. per our experience, docs will not put in more than 3 tubes.

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B.C.

answers from Norfolk on

I guess they are removing adenoids and tonsils separately now but when we had our sons tonsils out (he'd just turned 4 when we had it done), they did adenoids at the same time.
I'd try having her tonsils out.
It might help.
What have you got to lose at this point?

1 mom found this helpful
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K.W.

answers from Seattle on

The ear tubes are _supposed_ to fall out. Depending on the type of tube, they are intended to fall out within 6 months to a year. This may be needed to be done a few times, but eventually the young kiddo grows and the structure of the ear improves, so tubes aren't needed anymore.

The issue isn't that the tubes are falling out, it's that your kiddos inner ear hasn't "outgrown" this issue. Maybe the suggestion below about altering the structure of her inner ear is the next step. I don't see how removing the tonsils is going to help in this case.

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S.R.

answers from Kansas City on

I agree with Mynewnickname. With my DD disability, the eustachian tubes are very small and narrow and not properly developed so many of the kids have to have reconstructive surgery to stop the re-occuring ear infections. Luckily my child was one of the lucky ones but she did go through 3 sets of ear tubes.
I think you should try and see if you can indeed find a study that your DD can participate in, maybe you could find some answers. Good luck!

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