Bladder Reflux in Baby/Toddler Boys

My daughter has this. Mine was not diagnosed inuetero. So she is only a level 2 of 5. We went to John's Hopkins to meet with a specialist who is a lead on a major nih study on rivur. Go online and check it out. Not sure who you see in Atlanta. My DMSA scan for my daughter came back clean and with the pediatric urologist and his rn who leads the study we decided to take my daughter off the bactrum. Unless my daughter gets an uti with a fever the only screening we need to do is another kidney sonogram in 2 years. He travels the world and routinely sees kids 8-10 with no kidney function due to this condition not being treated. He was very understanding and supporitive of me taking my daughter off the anitbiotic. Largely due to her case being mild at 2 of 5 and her clear scans of the kidneys.

Doing a vcug with no recurrent utis seems cruel and unusual to me. I think that doc might need one just to understand what it feels like.
Did your guy even mention a scan? Was any kidney scarring noted? Because really that is the reason to worry, so if that is not present....

I've had 2 children w/ this condition. My first daughter was diagnosed at 2 years and placed on daily antibiotics. At the age of 7 she was grade 4 in each kidney and we had the surgery (deflux). She's been fine ever since. My second daughter was diagnosed at 4 months, placed on daily antibiotics (they prescribed the incorrect dosage for the first 6 weeks; it was about an adult's dosage); and it destroyed her gut. She developed leaky gut syndrome, which then led to a multitude of auto-immune diseases, food allergies, and sleep disorders. If I could do it all over again, I would have never put my infant on daily antibiotics. They need a chance for their healthy flora (in their digestive system) to develop. At the age of 3 years, 3 mos. she had outgrown the condition and has never had another kidney problem. If you're not going to give the antibiotics, then I recommend that you keep up with the VCUG's, ultra sounds and 4x yearly urine checks as well as urine checks w/ fevers over 100 degrees. Renal reflux is the leading cause of kidney failure; daily antibiotics for years, beginning in infancy caused my second born to have health problems that will affect her for the rest of her life. My first born would have experienced kidney failure w/out the treatments; my second born would have been fine. It's a difficult choice. Good luck.

My cousins daughter is 10 and has it and she just, two weeks ago, had to have a surgery for it. It is affecting her kidneys which is why the doctor decided to do the surgery. I would say that it is better to get it taken care of now when the is young and more likely to heal well and get over it quicker than when he is older and has irreversible damage. I do sympathize with you though. I have had to have procedures, such as allergy testing on my four year old done, that I wish I never had to put them through but it is better to get control of it now since you have a diagnosis and it is treatable.