Anyone Heard of Dysproxia

Hi K., I have a six year old that has been in speech therapy for three years now. She was diagnosis with speech dyspraxia at the age of 2 1/2. She has problems trying to express the words to you. She understands what you are saying and wanting her to do but it is hard for her to express what she wants you to do for her. She gets very frustrated with me. If you have any questions please ask me. Good Luck,
M.

Hi K.,
When I worked as a preschool teacher, there was a child in my class with dyspraxia, or something similar. This child could understand everything you said to him, but he could not really form words. He could point and make sounds. It was really frustrating to him, and he was somewhat aggressive towards the other kids. He was receiving speech therapy, and seemed to improve over the school year. I wish I knew how he was doing now! I guess be prepared for some frustration, especially in a large group setting. But I think a lot will depend on your son's personality and your attitude.
There seems to be lots of info out there, maybe you can even find an online support group. Good luck!

Hi Kristi,

My son was diagnosed with dysproxia about a year ago. He is four now and has been in speech therapy for about 8 months. Dysproxia is a malfunction in the pathways of your child's brain. The channels that send the message he wants to convey to you from his brain to his mouth. To help him, first assess how bad his speech really is. I have a friend who's son cannot be understood at all and he has been in therapy for 4 years. My son on the other hand can say one syllable words pretty effectivly and has improved quite a bit in those 8 months. Some children need to learn sign language inorder to communicate. Others use a set of flash cards that illustrate certain things they may want from around the house. I don't know how your insurance feels about speech therapy but it is very common for insurance companies to try and deny a child speech therapy especially when the diagnosis is dyspraxia. There are a lot of online communities online that offer advice on concern you may have. Good Luck:)

I haven't heard of it, but I would suggest googling it. My daughter was diagnose with cerebral palsy and I had to clue how it would affect her life or what caused it. I did a ton of research on the internet and it helped me come up with questions to ask her neurologist. Google is a great place to start! I hope this helps a little. Good luck and God bless!

My niece has a 4yr old that just will not talk, he can say basic words: momma, daddy, sissie, dondon, yumyum, yes, no and some others but he usually mumbles when he wants something and points alot or takes your hand and walks you to it. I had him and his older sister staying with me for 5 weeks and it was a little frustrating that I didnt know what he was trying to say, thank God his sister helped me understand some of it. I'm saying all this to ask, Is this how your son is? Could his condition possibly be dysproxia? My niece took him to a doctor about 2 yrs ago but they said he is just a slow learner and will talk soon, not to worry. Should she be worried?

Hi K. -

My son was diagnosed with verbal apraxia/dyspraxia and an overall global dyspraxia that affects his motor planning. In addition he has sensory issues. We were told this when he was 18 months old. He is now nearly 22 months old and doing very well (talking and his motor planning is almost normal, most people probably couldn't tell anything is wrong). He attends both speech and occupational therapy twice a week. We also put him on the GFCF diet since I read some where that this can help these kids. When he was 18 months he wasn't talking and would not even imitate us clappnig hands. If you would like to meet for coffee and talk that would be great. I know when we were first given the diagnosis I was pretty scared and didn't know what to expect.

-L.
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