N.C.
I had a broken odontoid (between C1 & C2) for almost 11 yrs...broke when I was 18 months but didn't show up until I had a shoulder XRay by a chiropractor when I was almost 12.) So, it was found by accident!
I NEVER had one issue to indicate anything was wrong! Once the injury was discovered, I had major surgery, a bone graft, time off school, etc, only to have it all redone when I was 16 because it was done wrong....again, I had no signs of anything being wrong!
So, I would say if you are having physical signs, definitely get a 2nd opinion by a specialist! They may see something that the other docs aren't seeing.
Best of luck w/ this...I am now 41 and am having all kinds of issues...arthritis, scoliosis, chronic pain. I have had 2 bone grafts (hip and ribs) and have 6 wires in my neck (I also have a rod in my leg from a totally separate injury when I was 25.)
Anyway, if you saw me, you'd never know I had all this stuf going on, but it still sucks! LOL! I hope you can find some relief and some answers! Take care of yourself and keep us posted.