Amniotic Band

Updated on January 31, 2011
C.S. asks from Bradley, IL
3 answers

i just found out that i have an amniotic band and was just wondering if anyone else has had this the dr said that there is not really anything they can do until the baby is born this will be my 4th child have a 7yr 3yr and 1 yr wondering if pick up the baby all the time has any affect just not sure what to do

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C.H.

answers from Pittsburgh on

Your doctor may be wrong. Mine was. My third child was diagnosed with ABS in utero and his life would have been very different had we listened to the first doctor rather than getting a second opinion. ABS is very rare, especially an in-utero diagnosis. There just isn't good info out there. We would up going to the Fetal Care Center in Cincinnati, OH and they were able to perform surgery that saved our son's life. Not all cases of ABS are life threatening, but you need to get a second opinion.

There is good info about it at http://www.amnioticbandsyndrome.com/ and the Fetal Care Center in OH is at http://www.fetalcarecenter.org/. There are a couple others scattered about the country, but this is the one I'm familiar with, as they took care of us.

There are NO known environmental or genetic links to ABS. You didn't do anything wrong at all. Also know that you are not alone. www.fetalhope.org has resources for parents who receive a diagnosis of a fetal syndrome. You can also check out my son's story of surviving ABS at www.caringbridge.org/visit/levimatthew.

Also, googling while I was pregnant and seeking a second opinion is why my son is alive and has two functional hands.

2 moms found this helpful
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A.S.

answers from Johnson City on

If you google it you can find a lot of info. Here is one website. http://fetus.ucsfmedicalcenter.org/amniotic/learn_more.asp
My OB always advised me against googling when I was pregnant.

1 mom found this helpful
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D.K.

answers from San Francisco on

Your doctor is correct. There is nothing to do. After the baby is born they can determine is it caused any problems. So sorry. I would say don't worry, but I am not sure you will be able to follow that advice. Try to remember that worrying will NOT change the outcome. You will just loose a lot of sleep or have a lot of stress. Best of luck!

1 mom found this helpful
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