OK, Mamas...I usually am on here, enjoying the site & answering questions that I feel my input could possibly help...now I need the input.
My 8mt old GreatGranGirl is having some unusual things going on in her little body, I have spent quite a few hours on the 'net trying to find something that even basically answers as to what is wrong...background: night before last she was @ my DD's with her mommy & daddy, she seemed sleepy when it wasn't a 'sleepy' time normally, as my DD sat rocking her she realized that the heat from GGG's knees was VERY hot, she could feel it through a sweatshirt, the three grown ups talked about it & decided to take the baby to, 'Urgent Care', they took blood, checked her out & told the parents to call their Ped ASAP, they believed it to be something 'genetic'...When they went to the Ped the next morning, they looked @ her knees, called in another Ped & said they were, 'perplexed' and that they thought it might be a mite she picked up from crawling on the carpet, gave them a script for Keflex & sent them on their way.
If they were perplexed why the keflex? She is STILL crawling around w/o seeming pain, the knees are still swollen, she is still sleepy more than usual. She had been running a low grade off & on prior to this but is teething.
The ONLY thing I found that is remotely liken to the symtoms is Lupus (neonatal and/or pediatric) have any of you ever dealt with this before?
I forgot to say that the knees are still hot.
Thanx, to all of you for your input...I must say that I am in AL & DD, DGD & DGGG are all in CA so when they call me with this, even tho' there isn't anything I can actually do, I am worried...We are waiting on the tests results...DD going to health food store to ask about the suggestion to help organically, she has one she regularly shops. If anything else gets weird y'all will be hearing from me!
As for the Lupus, it was the ONLY thing that I could find REMOTELY shadowing her symptoms...I have asked DD if they did an ANA test which is a marker for genetic problems including but not limited to, Lupus.
I am calmer now & keeping fingers, toes, eyes, legs, arms ALL crossed that it IS something simple that WILL go away with the Keflex...THANX! Once more, Mamas :)
One of the girls in my daughter's class got a staph infection in her knee from a wound. She went back and fourth for weeks before they figured it out. Apparently she could have died if it spread or lost her leg from it.
Just keep prodding them, someone will figure it out.
Riley, do you watch "house"? It's never lupus. :)
Well... first off...you never start out with the idea that it's an incurable disease. You start out with the idea that it's a treatable illness, and then work work to a diagnosis of exclusion.
Secondly, Lupus has about a gazillion differentials (okay, maybe 200) of other things that it could be that are NOT Lupus (the vast majority easily treated). Even something simple like asthma has over 80 differentials to exclude... Lupus is a multisystem disease... so it has a LOT more. So don't fret. Even in the rare case that it might be Lupus (nearly never is), it's going to be awhile. Every treatable condition needs to be ruled out first, as well as any untreatable condition that might just be mimicking it.
So BREATHE. Because if what you're reading means it sounds like Lupus... about 200 OTHER things also sound like lupus... which mean they sound like what your granddaughter has.
Really... this a hot red rash on the knees could be anything from rug burn, to contact dermatitis, to juvenile arthritis, to a bacterial infection, to, to, to, to (insert 200+ possibilities).
What docs usually do, is to clear the most probable things first (an antihistamine in case it's just an allergic reaction -which can cause redness and swelling- ... and an antibiotic to stomp on a bacterial infection like staph). Doing these two things will rule out over HALF of what it "could" be. They probably did an antihistamine in urgent care? To check for contact dermatitis (allergic reaction through the skin)? No effect was shown, so they sent you home with an antibiotic and are having you check with your Ped.
What they USUALLY say is "If it's not better by such and such a time come back in." which means that it's not a bacterial and then need to start doing more testing. MOST of the time, people don't need to come back in, so if you don't... they assume it was a bacterial infection cured by the antibiotic.
AKA if the antibiotic is having no effect, DO call and let the doctor know that.
Her knees being hot and swollen, her tiredness and running a low grade fever all indicate she's fighting an infection of some sort, so the Keflex is more than likely justifiable. This isn't to say everyone should just sit back, the fact that her knees are still hot and swollen indicates that 1) the Keflex may not be working (I say this because I have been taking an antibiotic for a serious infection since Sunday afternoon and swelling and heat in the area have disappeared) or 2) something else may be going on.
See how she's doing in the morning and urge her parents to contact her pediatrician if her symptoms continue. As long as she has the problem they need to insist that the doctors determine what it is. Praying she is over this soon.
wondering if they did any blood tests on her......St. Jude is a wonderful hospital that we support to yearly. Hope you'll find out what is going on with her..
